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  • May 11, 2015

    Rochester’s Only Brain Aneurysm and AVM Support Group Helps Survivors Adjust to the 'New Normal'

    A new brain aneurysm and AVM Support Group created by UR Medicine's Department of Neurosurgery will help patients and their families cope with the challenges of recovery and adjust to changes in their lives.

    The group will include individuals dealing with a cerebral aneurysm or AVM (arteriovenous malformation). An aneurysm is a weak spot on a vessel wall and an AVM is an abnormal tangle of vessels in the brain. These conditions can present without any symptoms (in many instances they are discovered during a workup for headaches not related to either disease) and can result in brain hemorrhages requiring surgeries and long ICU and rehabilitation stays.

    Recent advances in critical care and new imaging and surgical techniques have increased the survival rates of people with these conditions. However, this also means that more people must now contend with the lingering neurological effects that can follow, such as memory, cognitive, behavioral, speech, and mobility difficulties.

    The new support group meets on the first Thursday of each month from 6 to 8 p.m. at the Department of Neurosurgery's clinic at 2180 South Clinton Avenue in Rochester. The group is being supported by neurosurgeons Amrendra Miranpuri, M.D., Babak S. Jahromi, M.D., Ph.D., and Robert Replogle, M.D., and Sharon Mansfield, N.P., Cynthia Zink, P.A., and Kim Page, N.P.

    During the monthly meetings, patients and their families will be able to ask questions, learn about the latest developments in care, and share their experiences. The meetings will also include guest speakers and address topics such as the stages of recovery and how to overcome common obstacles. For more information please call (585) 275-7419 or (585) 273-1900, or e-mail sharon_mansfield@urmc.rochester.edu or visit the UR Medicine Brain Aneurysm, Stroke & AVM Support Group site.