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Community Support

The decision about blood and marrow transplant or stem cell rescue is a difficult one for individuals and their families. We are here to help you make that decision by providing information and counseling.

Educational Support

Our center has a library of books and videos so our patients and their families can find out more information about blood and marrow transplantation. Additional resources can be found at:

Support Groups

Group Name Location Phone Notes
Family Support Group Gilda’s Club
225 Alexander St.
Rochester, NY
(585) 423-9700

Meets every Wednesday from 6-8 p.m.
 

KATS (Kids Adjusting Through Support) program

 

(800) 785-2135

Meets every Monday from 6:30-8 p.m.
Lymphoma and Leukemia Networking Group Gilda’s Club
225 Alexander St.
Rochester, NY
(585) 423-9700 Meets on the 4th Wednesday of each month from 6-8 p.m.
Multiple Myeloma Support Group   (800) 784-2368 Meets on the 4th Tuesday of each month from 6:00-7:30 p.m.
Rochester BMT Support Group   Call Michael Ellis at (585) 275-5284 Meets on the 2nd Wednesday of each month from 7-8:30 p.m.

Home Care

Many of you will go home with several medications to help control potential infections, electrolyte imbalance, and side effects of treatment. At first, you may take these medications intravenously. These first few weeks at home may be overwhelming for patients and their family members. We can help arrange home care services, such as nursing services, pharmacy vendors, and catheter care supplies. Your home care agency will be determined by your preference, your insurance, and where you live.

Some of the nursing and infusion agencies we most frequently use are: