Rochester Regional Center for Autism Spectrum Disorders

Regional Projects and Research*

* RRCASD provides this information for purposes of community awareness of research within the region. Neither the University of Rochester nor the RRCASD endorses or takes any responsibility for the content or focus of the projects. All inquiries, questions, or concerns about specific projects should be directed to the project's Study Coordinator or Principal Investigator or to the institution’s Institutional Review Board (IRB) for research projects.

What Does Evidence-Based Mean?

The terms "evidence-based treatment" and "evidence-based practice" are often confused. Evidence-based treatments (EBTs) are interventions that have been proven effective through rigorous research methodologies. Evidence-based practice (EBP) refers to a decision-making process which integrates the best available research, clinician expertise, and client characteristics to inform treatment planning and progress monitoring, in order to improve the quality of clinical judgments and facilitate cost-effective care. 

In medicine and psychology, EBT and EBP are used to make clinical decisions for individual patients.

In education, EBT and EBP are used to make educational decisions for students.

To learn more, visit these web sites:

Did you know that the federal government sponsors autism spectrum disorders research?

Did you know that they also support early identification, treatment, and prevention of autism spectrum disorders? Learn about the Combating Autism Act of 2006; this act supports research, surveillance and education activities in autism spectrum disorders.

New Educational Tool for Pediatric Clinical Researchers and Parents Thinking About Involving their Children in Research Studies

On the topic of children and clinical studies "No More Hand-Me-Downs: Research Designed for Children" A Web site for Educating Parents and Pediatric Healthcare Providers about Pediatric Clinical Research" can help parents and providers learn more about research.

For Parents: This is a comprehensive new award-winning NIH web-based educational tool that can help erase the confusion, allay the concerns, and empower parents and children with the information they need to understand clinical research and make informed decisions about participating in a study.

For Providers and Researchers: You will find this site useful in helping you to answer your patients’ questions about research. You can also download the DVD-based documentaries to run in your waiting room.  

Autism Speaks Renews Support of the Interactive Autism Network

The Autism Speaks-funded Interactive Autism Network (IAN) at the Kennedy Krieger Institute in Baltimore, MD is a unique combination of an online registry and a social network. IAN has brought the community together in an unprecedented way since it was launched in April 2007 by collecting and sharing information that both supports families and fuels research. The Interactive Autism Network is an innovative online project designed to accelerate the pace of autism research by linking researchers and families.

Regional Research*

 

* The University of Rochester provides the information on this web site as a community service. It does not endorse or sponsor the events or organizations referred to on this site.

RRCASD

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Informing Families and the Community of Autism Spectrum Services and Resources