NICU Continuing Care Program

Some babies who were in the NICU are at risk for developmental or neurological delays later in childhood. Such delays can occur in babies born prematurely, those who are small for their gestational ages, or those babies who experience difficult NICU stays. To screen babies who are at risk, the NICU Continuing Care Program (NCCP) provides specialized follow-up.

The NICU Continuing Care Program is a joint project of the Golisano Children's Hospital Division of Neonatology and the Division of Neurodevelopmental and Behavioral Pediatrics.

The program is made up of two components:

The Infant-Toddler Developmental Program

The weekly Infant-Toddler Developmental Program includes specialists from neonatology, developmental and behavioral pediatrics, physical therapy, occupational therapy, and social work. The program is designed to support families in caring for their child and to monitor the progress of the child after leaving the NICU. During the baby's visit, we talk with the baby's parents, review the baby's medical and developmental history, and assess the baby's physical health and development of motor, language, and learning skills. We talk with parents about infant development and behavior. We work with parents and help them with concerns they have about infant behaviors like feeding, sleeping, and self-soothing.

In general, the babies followed in this program are those who have had long hospital stays or who have had medical complications. This generally includes babies:

  • Born prematurely (31 weeks or less, or weighing less than 1,200 grams)
  • With significant medical problems such as seizures, neurologic problems, persistant pulmonary hypertension
  • Requiring serious surgeries shorly after birth

Other infants and toddlers may be seen in this program when referred by the NICU team or by their Primary Care Provider.

The NICU Continuing Care Tracking Program

The tracking program consists of questionnaires sent to you and your pediatrician at regular intervals. The information you provide will help us identify how your child is progressing with the development of motor, communicationm and learning skills.

Contact Us

NICU Continuing Care Tracking Program
Golisano Children's Hospital
601 Elmwood Avenue, Box 651
Rochester, NY 14642
Phone: (585) 275-5301
Fax: (585) 461-3614

Infant Toddler Developmental Program
Golisano Children's Hospital
601 Elmwood Ave, Box 671
Rochester, NY 14642
Phone: (585) 275-2986
Fax: (585) 275-3366

Connect with Golisano Children's Hospital

Golisano Children's Hospital Development

News You Can Use

NICU Follow-Up Program newsletters include information about the NCCP Program, statistics on NICU babies, and tips for parents:


Follow-up on NICU Graduates

View historical information on all NICU graduates and on those evaluated in the NICU Continuing Care Clinic (NCCC).