Cystic Fibrosis Center

Educational and Support Resources

Cystic Fibrosis Infection Control

Cystic Fibrosis Nutrition

Cystic Fibrosis Pulmonary Treatments

Inspire - The URMC CF Center Newsletter

View an archive of past issues.

Cystic Fibrosis Networking Websites

Financial Resources

Community Resources

  • Better Days Ahead - Parenting and coping support
  • Kids Adjusting Through Support (KATS) - Provides free, compassionate, support and educational services to children and families coping with loss or serious illness.
  • Mental Health Association - Ideal for patients with chronic illness AND a mental health concern; parents can call themselves.
  • Crisis Nursery of Greater Rochester - Provides a safe, nurturing environment for children from birth to age 12 whose families are in crisis. For up to 72 hours, children can live at the nursery, cared for by trained staff.

Connect with Golisano Children's Hospital

Golisano Children's Hospital Development

What is Cystic Fibrosis?

Cystic fibrosis (CF) is a chronic condition in children and adults. It most often affects the lungs and digestive system of the body. Children with CF may have chronic lung infections and/or poor digestion of their food. Symptoms which are sometimes seen in CF but are also common in other illnesses may include:

  • A chronic cough
  • Frequent infections in the lungs
  • Wheezing/asthma
  • Nasal polyps
  • Difficulty gaining weight
  • Salty taste of the skin