Email this pagePatient-Centered Care
Dr. Peter Veazie’s research on the effectiveness of a graphical decision dashboard in supporting informed patient decisions offers the opportunity for training in:
- Partnerships among practitioners, patients and their families (when appropriate) to ensure that decisions respond to and respect patients' wants, needs and preferences;
- Partnerships to ensure that patients' input is solicited on the information, education and support they need to make decisions and to actively participate in their own care; and
- Shared decision-making of clinicians with patients and their families. A good opportunity for training on timeliness, efficiency, effectiveness and equity of health care can occur is a study Dr. Byung-Kwang Yoo is engaged in with a former CDC colleague on the cost-effectiveness of newborn screening on congenital adrenal hyperplasia.
Data from the Medicare Primary and Consumer-Directed Care Demonstration can be used for research training on many aspects of patient-centered care, including partnerships among practitioners, patients and their families; continuous collaboration, coordination and integration of care among providers, across conditions and settings; shared decision-making of clinicians with patients and their families, self-efficacy and self-management skills for patients, and provider-patient partnership (Dr. Bruce Friedman). This includes patient-centered care research focusing on the redesign and evaluation of care processes that lead to greater patient empowerment and improved patient-provider interaction.
Dr. Temkin-Greener is conducting patient-centered care research focusing on the redesign and evaluation of care processes that will hopefully lead to improved access, quality, and outcomes. Specifically, the National Institute on Aging is funding a study to assess the impact of health care processes on risk-adjusted outcomes of long-term nursing home residents. An important aspect of patient-centered care is palliative care.
Palliative care is a medical specialty devoted to caring for the seriously ill by providing relief from pain and other physical symptoms, improving quality of life, providing support to the seriously ill and the family and friends who love and care for them, and assisting the patient, family and staff with difficult medical decision-making. Palliative care at the University of Rochester is on the cutting edge of research to develop new patient-centered approaches to end-of-life care.
Dr. Temkin-Greener is Director of Research and Quality Improvement for the Palliative Care Program. This program is part of the UR Center for Ethics, Humanities and Palliative Care, and is led by Dr. Timothy Quill, who is highly regarded locally and nationally for his ongoing study of palliative care and end-of-life issues.
Dr. Quill is author of five books and numerous articles on issues related to palliative care and end-of-life concerns. His latest book is The Case for Physician-Assisted Dying: The Case for Palliative Care and Patient Choice (Baltimore: Johns Hopkins University Press, 2004).
The research and performance improvement component of the program is dedicated to advancing the science of palliative care by rigorously exploring key issues in palliative care and developing new knowledge in this field, providing research support and mentoring for junior faculty, and providing a framework for clinical, educational, and financial outcome evaluations. One of our current HSR Ph.D. students is a Research Assistant for Dr. Temkin-Greener on a palliative care study, “End-of-Life Practice Patterns in Nursing Homes.”
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