3rd Annual Patient Day Presentations for Saturday, September 18, 2010

 

Keynote Address: Perspectives from the Dutch FSHD Foundation

Presented by:

Kees van der Graaf

President

Dutch FSHD Foundation

 

Lab Update: Progress in our Understanding of the Disease Mechanism of FSHD

Presented by:

Silvere van der Maarel, PhD

Leiden University

 

Medical Update: The Four "S" Approach to Managing FSHD

Presented by:

John T. Kissel, MD

The Ohio State University

 

Advances in Research: Developing a Treatment for FSHD: Understanding the Process

Presented by:

Rabi Tawil, MD

Univeristy of Rochester Medical Center

 

Navigating the Social Security Disability Process

Presented by:

David Penrose

Benefit Representatives of America

Rochester, NY

 

Taking Care of Yourself- A Physical Therapist's Perspective

Presented by:

Kate Eichinger, PT, DPT, NCS

University of Rochester Medical Center

 

MDA- Assistance, Advocacy, Attitude.

Presented by:

Susan Staples, HCSC

Muscular Dystrophy Association

Rochester, NY

 

Home Care vs. Outpatient Care: How Do We Decide?

Presented by:

Debra Guntrum, MS, FNP

Univeristy of Rochester Medical Center

 

To view the 2nd Annual Patient Presentations please click here.

 

 

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