In the Spotlight:

2nd Annual Patient Day Agenda:

2nd Annual Fields Center

Patient Day

September 25, 2009

9:00 am – 3:00 pm

Memorial Art Gallery of the

University of Rochester

AGENDA – PAGE 1

8:30 - 12:30	Morning Session
8:30 - 9:00	Registration

9:00 – 9:10	Welcome/Opening Remarks	Rabi Tawil, MD

9:10 – 10:00	“Molecular Mechanisms in FSHD”	Silvere van der Maarel, PhD/Richard Lemmers, PhD

10:00 – 10:50	“Finding a Treatment for FSHD: Challenges & Opportunities”	Rabi Tawil, MD

10:50 – 11:00	Comfort Break

11:00 – 11:30	“FSHD and Your Family”	Jeanne Peterson, MS, CGC

11:30 – 11:45	Morning Wrap Up/Questions	Silvere van der Maarel, PhD

11:45 – 12:30	Lunch

12:20	Group Photo if you are interested

12:30 – 3:00	Afternoon Session

12:30 – 1:00	“Managing Respiratory Symptoms in Neuromuscular Disease”	Kimberley West Cawley, RRT

1:00 – 1:50	“Disability and Wellbeing: Challenges and Possibilities”	Ora Prilleltensky, Ed.D.
1:50 - 2:05	Comfort Break
2:05 – 2:45	“Keeping Mobile: Using Braces and Assistive Devices”	Katy Eichinger, PT, DPT, NCS
2:45 – 3:00	“Ask the Experts” Open Forum	All

3:00	Adjourn. Please complete the evaluation form located in your packet and return it to the table in the back of the room on your way out. Thank you!

Thank you for coming!

For more information, please contact the Fields Center FieldsCenter@urmc.rochester.edu