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The Finger Lakes Regional Perinatal Database contains all birth certificate data written with the Genesis electronic birth certificate software collected since 1994 from participating Finger Lakes Hospitals. These data are used primarily for retroactive OB and prenatal care analyses.
The following access or aggregation levels define how these data can be released.
Community Level
Definition: Community level access is the identification
of any political or geographical area or group of similar people. This level
does not identify facilities, providers or patients. An example of community
level access is “a total count of women by age group who delivered
a baby”.
Access: Community identifiable information is available to a requestor.
Facility Identified Level
Definition:
Facility identified level is a place, facility, location or collection of
healthcare organizations where health
care services are delivered. Individual providers or patients are not
identified. An example of access at the facility identifiable level is “a
count by hospital of women by age group who delivered a baby”.
Access: Facility
identifiable information is available to a requestor with written notification
to identified facilities or organizations.
Provider Identified Level
Definition: Any health care professional is identified at this level. This level does not identify patients. An example of access at the provider identifiable level is “a count by physician of women by age group who delivered a baby”.
Justification: DPHP recognizes the sensitivity of provider specific information. Although provider-identified data is available through a variety of public software products, DPHP will follow New York State’s (NYSDOH) SPARCS access and release policy.
Note: We cannot identify providers without specific approval by each participating facility’s gatekeeper.
Patient Identified Level
Definition: The identification
of a person living or dead that is or was treated by a health care provider. An
example of patient level access is “a listing by physician of women by age
group (with identifiers) who delivered a baby”.
Access: We expect that this level of request will occur only on rare occasions, and release of any patient identifiable data is through special authorization only. Each request at this level is subject to signed approval by each hospital or system gatekeeper.