Deaf Healthcare Survey (CAHPS®)CAHPS flyer

General Information

RPRC:NCDHR has developed the Deaf Healthcare Survey, a computer-based sign language version of the Consumer Assessment of Heathcare Providers and Systems (CAHPS®). CAHPS® is a family of surveys that focus on patients' experiences with healthcare in doctor's offices, hospitals, and other healthcare settings.

The Deaf Healthcare Survey was given in sign language on a touch-screen laptop using the same platform as the RPRC:NCDHR Deaf Health Survey. About 100 deaf adults 18 and older took the survey.

Researchers are now analyzing the data and will share the results in the future through publications and presentations.

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Graybill P, Aggas J, Dean RK, Demers S, Finigan E, Pollard RQ. A community participatory approach to adapting survey items for Deaf individuals and American Sign Language. (Abstract)Field Methods 2010; 22(4); 429-448.

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Barnett S. Healthcare experiences of deaf sign language users: Adapting CAHPS. Presented at the Agency for Healthcare Research and Quality's (AHRQ's) 5th Annual Conference, Bethesda, MD; 2012.

Mowl C, O'Hearn A, Panko T, Sutter E, and Barnett S. Collecting research data from deaf ASL users: How do we know we're asking the right questions? (Abstract). Presented at the APHA 139th Annual Meeting, Washington DC; 2011, November 2.

Barnett S. Healthcare Experiences of Deaf Sign Language Users: Experiences Adapting a Written English Survey [Abstract (search Barnett, Steven)]. Presented at the North American Primary Care Research Group, Seattle WA; 2010 November 13-17.

Barnett S, Sutter E, and Kushalnagar P. Adapting Patient Outcome Measures (PROMs) for use with Diverse Populations: Experiences with American Sign Language. Presented at the International Society of Quality of Life Research, London, England; 2010 October 27-30.

Barnett S, Schlehofer D, Sutter E. Deaf consumers’ healthcare experiences: The need for an accessible CAHPS®. Presented at the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Users Group Meeting, Baltimore, MD; 2010 April 19-21.

Barnett S. Deaf people and healthcare: Adapting CAHPS® to be accessible for sign language users (Slides). Presented as part of the OEREP Panel Session on Successful Career Development in Health Services Research during the Agency for Healthcare Research & Quality (AHRQ) 2008 Annual Conference: Promoting Quality: Partnering for Change, Bethesda, MD; 2008 Sept 7-10.

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More about CAHPS®:

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This project is supported by grant K08 HS15700 from the Agency for Healthcare Research and Quality (AHRQ).


Deaf Strong Hospital 2015

Actors needed!


Seeking Deaf persons age 18 and up interested in participating in Deaf Strong Hospital, an all-day activity for first-year medical students at the University of Rochester School of Medicine & Dentistry that will teach them what it feels like to be Deaf in a hearing hospital.

DSH 2014 group pic

This is a role-reversal exercise, which means all of the doctors, receptionists, and pharmacists are Deaf and only communicate in ASL. The medical students will become patients and will have to learn how to communicate with Deaf doctors and nurses to get the health care they need. This fun and exciting event will take place at the University of Rochester Medical Center on August 28, 2015 from 8:30 to 3:30pm.

You will be paid about $50 for your participation. Free lunch and a t-shirt will also be provided to all participants.

Interested? Contact

Ian Deandrea-Lazarus