Education

Graduate Student Shayne Ragbeer (left), Study Coordinator Sara Defendorf (right)

One of the goals of the University of Rochester Batten Center (URBC) is to help families understand the nature of Batten disease. Educational materials are available through the Center and through the Batten Disease Support and Research Association (BDSRA). We also provide education about Batten disease to other health care providers and to schools.

A free, downloadable copy of Dr. Adams's talk, Behavioral and Educational Strategies, presented at the 2009 BDSRA Conference is available here.

Additional educational material can be found at the Batten Disease Support and Research Association (BDSRA).

Contact Us

Batten Study Group
601 Elmwood Ave
Box 631
Rochester, NY 14642
Phone: 585-275-4762
Fax: 585-275-3683
(directed to Amy Vierhile)