Newsletters

Information in this year's newsletter helps "answer" these and other questions about being part of the Registry team:

What is the importance of enrolling people of all “severities” into the Registry (page 2)?
Can your Registry information (re: medications, leg braces, surgeries, etc.) be used to improve the care of all patients (page 2-4)?
Are there exciting new insights in DM and FSHD that may lead to new drugs (page 5-6)? Are we prepared for new treatments (page 7)?
How can all our voices be heard (page 10-11)?