Staff

University of Rochester Medical Center

Leadership

Richard Moxley, III, MD, Principal Investigator
Rabi Tawil, MD, Co-Investigator
Charles Thornton, MD, Co-Investigator
Mike McDermott, PhD, Biostatistician

Data Management

Bill Martens, Data Manager
Eileen Eastwood, Information Analyst

Research Coordinators

James Hilbert, MS
Elizabeth Luebbe

Research Secretary

Karen Richards

Administrative

Hugh Higgins, Administrator
Tracy Forrester, Information Analyst

Information Technology

Jim Forrester, MS

Scientific Advisory Committee

The Registry's Scientific Advisory Committee includes scientists and researchers from all over the United States and Canada, who were instrumental to develop the design and forms of the Registry and who provide ongoing support to review investigator applications submitted to the Registry, to review and develop standard operating procedures of the Registry, and to facilitate the development of presentations and manuscripts.

Tetsuo Ashizawa, MD; University of Florida
Richard Barohn, MD, University of Kansas
Paula Clemens, MD, University of Pittsburgh
Michael Conneally, PhD, Indiana University
John Day, MD, University of Minnesota
Denise Figlewicz, PhD, ALS Society of Canada
Jacqueline M. Gray, Indiana University
John Kissel, MD, the Ohio State University
Shannon Lord, Myotonic Dystrophy Foundation
Katherine Mathews, MD, University of Iowa
Don Sanders, MD, Duke University
Stephen Tapscott, MD, PhD, University of Washington