Brain Tumor and Spinal Tumor Program
Patient Resources
Please utilize the following patient resources for friends & families of those afflicted by Brain Tumors and Spinal Tumors.
| Adult Brain Tumor Network at the University of Rochester Medical Center | |
|---|---|
| Contact: Barbara Guttman, LMSW Oncology Social Worker (585) 275-4631 |
Overview: Support group for adults with malignant primary brain tumors and their adult family members. |
| Acoustic Neuroma Association | |
|---|---|
|
Contact: 600 Peachtree Parkway, Suite 108 Cumming, GA 30041 Phone: (877) 200-8211, (770) 205-8211 Fax: (770) 205-0239 Web: www.anausa.org E-mail: info@anausa.org | Overview: The Acoustic Neuroma Association provides literature and articles on acoustic neuromas. Their newsletter, Notes, is published quarterly. They also hold a national symposium every two years. |
| American Brain Tumor Association | |
|---|---|
| Contact: 2720 River Road, Suite 146 Des Plaines, IL 60018 Phone: (800) 886-2282, (847) 827-9910 Fax: (847) 827-9918 Web: www.abta.org E-mail: info@abta.org |
Overview: The American Brain Tumor Association provides numerous publications and support group listings, funds research, and publishes a newsletter. |
| Brain Injury Association of America | |
|---|---|
| Contact: 8201 Greensboro Drive, Suite 611 McLean, VA 22102 Phone: (800) 444-6443, (703) 761-0750 Web: www.biausa.org |
Overview: The Brain Injury Association produces a quarterly newspaper called TBI Challenge. They also provide reference books, updated resource information and referrals to nationwide rehabilitation facilities. |
| National Brain Tumor Society | |
|---|---|
| Contact: 124 Watertown Street, Suite 3H Watertown, MA 02472 Phone: (800) 770-8287, (617) 924-9997 Fax: (617) 924-9998 22 Battery Street, Suite 612 San Francisco, CA 94111-5520 Phone: (800) 934-2873, (415) 834-9970 Fax: (415) 834-9980 E-mail: info@braintumor.org Web: www.braintumor.org |
Overview: The National Brain Tumor Society (NBTS) is a non-profit organization that funds research and provides information and support to patients, family members and health professionals. Since 1983, NBTS has awarded over $4 million in grant funding for research projects. NBTS also provides patient programs, support an information. NBTS offers support by telephone, information and referrals, a telephone network for patients/family members, and a list of support groups in the U.S. Its newsletter, Heads Up, is published three times a year. NBTS is also very active in fundraising for brain tumor research. |





