Brain Tumor and Spinal Tumor Program

Patient Resources

Please utilize the following patient resources for friends & families of those afflicted by Brain Tumors and Spinal Tumors.

Adult Brain Tumor Network at the University of Rochester Medical Center

Contact:
Barbara Guttman, LMSW
Oncology Social Worker
(585) 275-4631

Overview:
Support group for adults with malignant primary brain tumors and their adult family members.

Acoustic Neuroma Association

Contact:
600 Peachtree Parkway, Suite 108
Cumming, GA 30041
Phone: (877) 200-8211, (770) 205-8211
Fax: (770) 205-0239
Web: www.anausa.org
E-mail: info@anausa.org

Overview:
The Acoustic Neuroma Association provides literature and articles on acoustic neuromas. Their newsletter, Notes, is published quarterly. They also hold a national symposium every two years.

American Brain Tumor Association

Contact:
2720 River Road, Suite 146
Des Plaines, IL 60018
Phone: (800) 886-2282, (847) 827-9910
Fax: (847) 827-9918
Web: www.abta.org
E-mail: info@abta.org

Overview:
The American Brain Tumor Association provides numerous publications and support group listings, funds research, and publishes a newsletter.

Brain Injury Association of America

Contact:
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone: (800) 444-6443, (703) 761-0750
Web: www.biausa.org

Overview:
The Brain Injury Association produces a quarterly newspaper called TBI Challenge. They also provide reference books, updated resource information and referrals to nationwide rehabilitation facilities.

National Brain Tumor Society

Contact:
124 Watertown Street, Suite 3H
Watertown, MA 02472
Phone: (800) 770-8287, (617) 924-9997
Fax: (617) 924-9998

22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Phone: (800) 934-2873, (415) 834-9970
Fax: (415) 834-9980

E-mail: info@braintumor.org
Web: www.braintumor.org

Overview:
The National Brain Tumor Society (NBTS) is a non-profit organization that funds research and provides information and support to patients, family members and health professionals. Since 1983, NBTS has awarded over $4 million in grant funding for research projects. NBTS also provides patient programs, support an information.

NBTS offers support by telephone, information and referrals, a telephone network for patients/family members, and a list of support groups in the U.S. Its newsletter, Heads Up, is published three times a year. NBTS is also very active in fundraising for brain tumor research.