Patient Resources
Please utilize the following patient resources for friends & families of those afflicted by Brain Tumors and Spinal Tumors.
Adult Brain Tumor Network at the University of Rochester Medical Center
Contact:
Barbara Guttman, LMSW
Oncology Social Worker
(585) 275-4631
Overview:
Support group for adults with malignant primary brain tumors and their adult
family members.
Acoustic Neuroma Association
Contact:
600 Peachtree Parkway, Suite 108
Cumming, GA 30041
Phone: (877) 200-8211, (770) 205-8211
Fax: (770) 205-0239
Web: www.anausa.org
E-mail: info@anausa.org
Overview:
The Acoustic Neuroma Association provides literature and articles on
acoustic neuromas. Their newsletter, Notes, is published quarterly. They
also hold a national symposium every two years.
American Brain Tumor Association
Contact:
2720 River Road, Suite 146
Des Plaines, IL 60018
Phone: (800) 886-2282, (847) 827-9910
Fax: (847) 827-9918
Web: www.abta.org
E-mail: info@abta.org
Overview:
The American Brain Tumor Association provides numerous publications and
support group listings, funds research, and publishes a newsletter.
Brain Injury Association of America
Contact:
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone: (800) 444-6443, (703) 761-0750
Web: www.biausa.org
Overview:
The Brain Injury Association produces a quarterly newspaper called TBI
Challenge. They also provide reference books, updated resource information
and referrals to nationwide rehabilitation facilities.
National Brain Tumor Society
Contact:
124 Watertown Street, Suite 3H
Watertown, MA 02472
Phone: (800) 770-8287, (617) 924-9997
Fax: (617) 924-9998
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Phone: (800) 934-2873, (415) 834-9970
Fax: (415) 834-9980
E-mail: info@braintumor.org
Web: www.braintumor.org
Overview:
The National Brain Tumor Society (NBTS) is a non-profit organization that
funds research and provides information and support to patients, family
members and health professionals. Since 1983, NBTS has awarded over $4
million in grant funding for research projects. NBTS also provides patient
programs, support an information.
NBTS offers support by telephone, information and referrals, a telephone network for patients/family members, and a list of support groups in the U.S. Its newsletter, Heads Up, is published three times a year. NBTS is also very active in fundraising for brain tumor research.
