Please utilize the following patient resources for friends & families of those afflicted by Brain Tumors and Spinal Tumors.
Adult Brain Tumor Network at the University of Rochester Medical Center
Barbara Guttman, LMSW
Oncology Social Worker
Support group for adults with malignant primary brain tumors and their adult family members.
Acoustic Neuroma Association
The Acoustic Neuroma Association provides literature and articles on acoustic neuromas. Their newsletter, Notes, is published quarterly. They also hold a national symposium every two years.
American Brain Tumor Association
The American Brain Tumor Association provides numerous publications and support group listings, funds research, and publishes a newsletter.
Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone: (800) 444-6443, (703) 761-0750
The Brain Injury Association produces a quarterly newspaper called TBI Challenge. They also provide reference books, updated resource information and referrals to nationwide rehabilitation facilities.
National Brain Tumor Society
124 Watertown Street, Suite 3H
Watertown, MA 02472
Phone: (800) 770-8287, (617) 924-9997
Fax: (617) 924-9998
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Phone: (800) 934-2873, (415) 834-9970
Fax: (415) 834-9980
The National Brain Tumor Society (NBTS) is a non-profit organization that funds research and provides information and support to patients, family members and health professionals. Since 1983, NBTS has awarded over $4 million in grant funding for research projects. NBTS also provides patient programs, support an information.
NBTS offers support by telephone, information and referrals, a telephone network for patients/family members, and a list of support groups in the U.S. Its newsletter, Heads Up, is published three times a year. NBTS is also very active in fundraising for brain tumor research.