University of Rochester School of Medicine
National Registry of Myotonic Dystrophy & FSHD

National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members

The National Registry was developed to:

  • Help people with Myotonic Dystrophy (DM) or Facioscapulohumeral Muscular Dystrophy (FSHD) participate in research on their disease.
  • Help investigators accomplish their research by connecting them with people who have DM or FSHD.
  • Encourage more research on these rare diseases.

Registry Logo

This project has been funded in whole or part by Contract #N01-AR-50-227450 from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and the National Institute of Neurologic Disorders and Stroke (NINDS).

Combined logos of NIH, NIAMS and NINDS

dystrophy_registry@urmc.rochester.edu

Updated 9/12/2006

 

 

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Last updated: 03/30/2007 11:25 AM