Improving Well-Being for Older Adult Family Dementia CaregiversResearch Question:
Can attending a brief small-group program designed to reduce stress and promote health
and wellness, lead to measurable improvements in immune health as well as physical
and emotional well-being in people caring for a loved one who has dementia?
Basic Study Information
Purpose:Location: Rochester, NY
The purpose of the study is to examine the effects of the Mindfulness-Based Stress
Reduction (MBSR) program and the Living Well (LW) for Dementia Caregivers program,
compared to any usual care, to see if the programs might be associated with better
immune function, physical and emotional health, and well-being.
This study is looking for individuals age 55 and up who are caring for a loved one
(such as a spouse, parent, close friend) who has dementia. Participation includes
attending a weekly small group meeting over eight weeks for one of two study programs
(determined randomly). Both programs address ways of improving physical and emotional
well-being in the context of dementia caregiving. These 8-week programs typically
begin in late August at Monroe Community Hospital.
Study Web URL: https://research.son.rochester.edu/dementia-caregiving/
Study Reference #: STUDY0000881
Lead Researcher (Principal Investigator)
Lead Researcher: Kathi Heffner
Study Contact InformationStudy Coordinator: Jeff Swan
Phone: (585) 275-6835
Additional Study Details
Participation includes up to five flexibly scheduled private study visits which can
be done either in your home or at the U of R (parking validation is provided). Most
visits involve answering questions about things such as general health, stress, and
mood, as well as about your caregiving role and what it’s been like for you. Some
visits also involve a blood draw to measure aspects of immune system health. Optional
care support staff can be available to spend time with your loved one with dementia
during the study visits.
The 8-week programs typically begin in late August and meet weekly at Monroe Community
Hospital. If desired, optional in-home respite care can be covered by the Alzheimer’s
Association for your loved one during the meetings.
Participants will receive up to $200 for completion of the study. Enrollment occurs
yearly around May thru late Aug, but the study team is happy to discuss the details
at any time. For more information, please call (585) 275-6835, email us at firstname.lastname@example.org,
or complete the confidential “Contact This Study” section of this webpage.
Learn More About These Conditions
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More information about Dementia
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More information about Dementias
More information about Frontotemporal Dementia
More information about Presenile dementia
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