Long-term Study in US Cystic Fibrosis Patients Receiving Digestive Enzyme Supplements
to Assess Narrowing of the Large Intestine Causing Adverse Intestinal Symptoms (Fibrosing
Colonopathy)
Research Question:
What is the occurrence of fibrosing colonpathy in cystic fibrosis patients?
Basic Study Information
Purpose:
This is a long-term study in cystic fibrosis patients who are participating in the
Cystic
Fibrosis Patient Registry to assess the occurrence and risk factors for a rare bowel
disorder
called fibrosing colonopathy (narrowing of the large intestine). Patients will be
followed at
their regular clinical care visits over a 10-year period and approached if they develop
symptoms of fibrosing colonopathy for collection and use of further detailed information.
Location: University of Rochester /ID# 92713
Study Contact Information
Phone: (301) 841-2606
Email: cdowd@cff.org
Additional Study Details
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