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Future Contact Database/Repository for Allergy, Immunology, and Rheumatology Research

Research Question:
We would like to establish a contact database to help recruit participants for future studies based on diagnoses and interests.

Basic Study Information

Autoimmune diseases affect the immune system and are typically chronic conditions in which the immune system has an overactive response against substances and tissues that are normally present in the body. How autoimmunity develops, progresses, induces immunological abnormalities and leads to disease remains largely unknown, producing the need for further research. However, because the necessary samples are unique and somewhat rare, the ability to do research can at times be hindered. One purpose of this protocol is to establish a database that will serve as both a contact and research database. Subjects who are currently participating in one of our studies as well as those who are interested in participating in future research at the University of Rochester will be consented so that we may store their personal information in a division database. We will also store data collected during the conduct of IRB approved studies which reference this protocol. Healthy controls and individuals with diseases affecting the immune system may be consented and enrolled into this protocol.

Location: URMC
Study Web URL:
Study Reference #: STUDY276

Lead Researcher (Principal Investigator)

Lead Researcher:  Jennifer Anolik, MD, PhD

Study Contact Information

Study Coordinator: Amanda Howell
Phone: (585) 273-1725

Additional Study Details

Study Details:
Subjects may be consented and enrolled into this protocol so that their contact information can be captured and stored so they may be contacted to take part in separate, future protocols. An in-person visit is not required to enroll into this contact database; verbal consent can be collected. During enrollment, subjects will be asked if they are interested in participating in blood draws, synovial biopsies, skin biopsies, bone marrow aspirations, and tonsil biopsies. If there is a study they are eligible for that has a procedure they are interested in, they will be contacted with information about that study. There will be no payment for participation in the registry, however, if patients are referred to other studies it is possible they receive compensation under those studies.

Parking:  Free
Transportation Coverage:  No
Reimbursement:  No

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