Comparing Healthy Young Adults/Children to Those With CLN3 DiseaseResearch Question:
What is the impact of CLN3 disease on the brain?
Basic Study Information
Purpose:Location: University of Rochester
We are inviting children and young adults with no known neurological disease to participate
in a research study that
involves brain magnetic resonance imaging (MRI) scans over three years. The purpose
of this study is to prepare for future clinical trials focused on a rare disease called
CLN3 disease. CLN3 disease is a neurodegenerative disease affecting children and young
adults. As part of this study, we are examining the ways in which CLN3 disease affects
the brain. To understand this impact, we will use MRI scans to compare the brains
of healthy people to brains of people with CLN3 disease. Following the initial study
visit, visits will take place at 6, 12, 18, 24, and 36 months.
Compensation will be provided following each completed study visit.
Study Web URL: https://is.gd/URBCresearch https://is.gd/URBCresearch
Study Reference #: STUDY00003459
Lead Researcher (Principal Investigator)
Study Contact InformationStudy Coordinator: Grace Zimmerman
Phone: (585) 276-3987
Additional Study Details
Participants will be asked to attend visits at the University of Rochester every six
months for three years. Compensation of $30 will be provided following each completed
Number of Visits:
2 to 5
$30 paid by check
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