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Comparing Healthy Young Adults/Children to Those With CLN3 Disease

Research Question:
What is the impact of CLN3 disease on the brain?

Basic Study Information

Purpose:
We are inviting children and young adults with no known neurological disease to participate in a research study that involves brain magnetic resonance imaging (MRI) scans over three years. The purpose of this study is to prepare for future clinical trials focused on a rare disease called CLN3 disease. CLN3 disease is a neurodegenerative disease affecting children and young adults. As part of this study, we are examining the ways in which CLN3 disease affects the brain. To understand this impact, we will use MRI scans to compare the brains of healthy people to brains of people with CLN3 disease. Following the initial study visit, visits will take place at 6, 12, 18, 24, and 36 months. Compensation will be provided following each completed study visit.

Location: University of Rochester
Study Web URL:  https://is.gd/URBCresearch https://is.gd/URBCresearch
Study Reference #: STUDY00003459

Lead Researcher (Principal Investigator)

Lead Researcher:  Erika Augustine

Study Contact Information

Study Coordinator: Grace Zimmerman
Phone: (585) 276-3987
Email: grace.zimmerman@chet.rochester.edu

Additional Study Details

Study Details:
Participants will be asked to attend visits at the University of Rochester every six months for three years. Compensation of $30 will be provided following each completed study visit.

Number of Visits:  2 to 5
Parking:  Free
Transportation Coverage:  No
Reimbursement:  Yes
Payment Details:  $30 paid by check

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