Bone marrow transplantation is very emotionally and physically stressful. As discharge approaches, you may feel excited and apprehensive. It is common to be fearful of leaving the hospital. Feel free to share your feelings and concerns with the transplant team.
You may be concerned about monitoring your progress at home (for example, care of your tunneled central venous catheter, skin care, watching for fevers). Your family may worry about their ability to handle the responsibilities that were once those of the hospital staff. It is not unusual to miss the care and attention from the staff.
You may be anxious about returning to your previous role as parent, spouse, brother, sister, student, or employee. You may wonder about your ability to resume these roles. Family members may have assumed some of your responsibilities and may need to continue until you have recovered more completely.
It is common to feel “down” at times. You may become frustrated because you need assistance from those around you. It is important to remember that these feelings are normal. It may be helpful for you to seek out a supportive person to talk with. You may also find the Transplant Support Group meetings helpful. At this meeting, you and your family can meet and talk with others who have undergone transplant. Mental health care professionals have been helpful to many individuals also. Speak with a member of the transplant team if you think this is an option for you.