Cerebral Palsy - Resources Regional Resources CP Rochester Connecting People with Physical Disabilities to Communities. CP Rochester provides supports and services to individuals with physical and developmental disabilities across the life span. Rochester Rehabilitation Center provides services to individuals with disabilities, focusing on work, wellness and independence. Upstate Cerebral Palsy based in Utica New York provides individualized programs and services for individuals with disabilities in the Utica area. Aspire, Buffalo New York provides services to individuals with cerebral palsy and other developmental disabilities in Western New York. Support Groups Parent/Caregiver Support group for parents of children with disabilities. Please contact CP Rochester at (585) 334-6000, ext. 211. Hispanic Family Support Group for parents of children with developmental disabilities. Please contact them at (585) 454-1620. National Resources Cerebral Palsy Guidance The Cerebral Palsy Guidance website provides answers and assistance to parents of a child with cerebral palsy (CP). Users will find condition information, articles about living with CP, information on financial assistance, and more. Center for Disease Control The Center for Disease Control website provides an overview of Cerebral Palsy, common causes, screening for cerebral palsy and current research and tracking of prevalence. They also have links to research papers and several other online resources. National Institute of Neurologic Disorders and Stroke (NINDS) National Institute of Neurologic Disorders and Stroke (NINDS) is an excellent resource for any neurologic condition and links to other national resources. Cerebral Palsy International Research Foundation Cerebral Palsy International Research Foundation offers information to families with a focus on current research into such topics like hyperbaric oxygen, Adeli suits, dolphin assisted therapy and cell-based research. Children's Hemiplegia and Stroke Association Children's Hemiplegia and Stroke Association site provides information about a wide range of topics for families from new diagnosis to teen and adult issues. They also provide suggestions about daily living skill modifications for people with hemiplegia. American Academy of Developmental Medicine and Cerebral Palsy American Academy of Developmental Medicine and Cerebral Palsy website offers professional information and some family directed information regarding recognizing the symptoms and locating professionals. The American Academy of Pediatrics The American Academy of Pediatrics provides an overview of CP. This includes information on signs and symptoms, treatments, and associated problems. My Child Without Limits My Child Without Limits provides resources for families of young children ages 0-5 with developmental delays or disabilities, including CP. The site also has information about government programs that may be accessed, educational recommendations including assistive technology and complementary and alternative therapies. The National Information Center on Children and Youth with Disabilities (NICHCY) The National Information Center on Children and Youth with Disabilities (NICHCY) provides information on disabilities and disability-related issues for families, teachers, and other professionals. NICHCY has a fact sheet about cerebral palsy that includes information on topics such as signs of cerebral palsy and treatment, as well as tips for parents and teachers. NICHCY staff will also give information and referrals over the phone (800-695-0285) or by email. The National Institute of Neurological Disorders and Stroke (NINDS) The National Institute of Neurological Disorders and Stroke (NINDS) has a brochure on cerebral palsy that includes information on early signs of the condition, diagnosis, causes, treatment, and where to go for more information. The brochure is available in both English and Spanish. This site also provides information about medical issues for adults with cerebral palsy. Canine Companions Canine Companions for Independence: a nonprofit organization that enhances the lives of people with disabilities by providing trained assistance dogs. DuPont Hospital for Children Alfred I. DuPont Institute of The Nemours Foundation presents "A Guide for Care for Children with Cerebral Palsy". Reaching for the Stars Reaching for the Stars: A Foundation of Hope for Children with Cerebral Palsy. United Cerebral Palsy United Cerebral Palsy provides information on cerebral palsy and issues related to living with Cerebral Palsy, including health and wellness, education, employment, parenting, families and leisure. University of Michigan Neurogenetic Disorders Clinic University of Michigan Neurogenetic Disorders Clinic provides Information on Familial (Hereditary) Spastic Paraplegia. Books and Other Materials Caring for Children with Cerebral Palsy: A Team Approach written by John Dormans and Louis Pelligrino (Ed.S.), 1998. Ceana has CP, written by C. Fran Card. Children with Cerebral Palsy, A Parents Guide, written by Elaine Geralis, 1998, 2nd edition. Cerebral Palsy: A Complete Guide for Care Giving, written by Freeman Miller, Steven Bachrach and Sieglinde Martin, 1995. Coping With Cerebral Palsy: Answers to Questions Parents Often Ask, written by Jay Schleickorn, 1993, 2nd edition. I Raise My Eyes To Say Yes (Cerebral Palsy Biography) written by Ruth Sienkiewicz-Mercer and Steven Kaplan, 1989. Keys to Parenting a Child with Cerebral Palsy, Jane Faulkner Leonard, Sherri Cadenhead and Margaret Myer, 1997. Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders, written by Sieglinde Martin, 2006.