Spina Bifida - Resources Local Resources and Organizations Greater Rochester Spina Bifida Association, provides local support for families SportsNet, this is part of Rochester Rehab and offers sports programs for youth and adult including the Rochester Rookies track and field team Family Voices of New York provides information and resources to families of children and youth with special health care needs (CYSHCN) and the professionals who work with them through individual information and referrals, parent matching, conferences and sharing of materials including care notebooks and resource guides. Finger Lakes Region Parent to Parent Support Organization is a place where families of individuals with special needs, and the professionals who support them, can meet and share information. Spina Bifida Associaton of Western New York Serving individuals, families, and caregivers of people effected by Spina Bifida, for more information visit their Facebook Brain Injury Association of New York State BIANYS has created Project LEARNet. Although this information was developed for people that have sustained a Traumatic Brain Injury (TBI) the information about learning issues is often the same for people that have spina bifida and shunted hydrocephalus. This is a very interactive web site for parents, children/teens and professionals to help understand the learning needs and accommodations that are helpful. General Information Spina Bifida Association of America ASBAH - Association for Spina Bifida and Hydrocephalus Birth Defects Research for Children Children with Spina Bifida - A Resource Page for Parents & Professionals Family Voices International Federation for Hydrocephalus and Spina Bifida National Center for Learning Disabilities National Institute of Neurological Disorders and Stroke National Organization on Disability Spina Bifida and Hydrocephalus Association of Canada SCI Information Network Information About Learning Issues and Children With Spina Bifida LD Online National Center for Learning Disabilities National Information Center for Children and Youth with Disabilities Non Verbal Learning Disability site Family Advocacy My Child Without Limits My Child Without Limits provides resources for families of young children ages 0-5 with developmental delays or disabilities, including spina bifida. The site also has information about government programs that may be accessed, educational recommendations including assistive technology and complementary and alternative therapies. Management of Common Health Conditions Latex Allergy Links - Spina Bifida thru the Spina Bifida Association of America Spina Bifida Prevention and Genetics National Birth Defects Prevention Network Folic Acid Campaign, NCBDDD,CDC Genetic Alliance, Inc.