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URMC / Golisano Children's Hospital / Giving / Strong Kids News
Fairport Music Festival an Instrument of Hope

Fairport Music Festival an Instrument of Hope

Fairport Music Festival will kick off on Friday at 5 p.m. with three bands playing on the festival’s Railroad Stage. The fun will continue Saturday from noon to 10 p.m. and will feature music on four different stages, with more than 30 bands performing. Guests will enjoy a variety of food offerings, with favorites from local food trucks and nearby Fairport eateries. With entertainment for everyone in the family, the day will also feature kids’ activities from noon to 6 p.m. including bounce houses, arts and crafts, and more!

Complex Care Center remaking treatment for adults with childhood diseases

Complex Care Center remaking treatment for adults with childhood diseases

Children with complex, lifelong medical conditions face many challenges; one of the biggest happens when they turn 18 and have to make the transition from pediatric to adult primary care. A new UR Medicine primary care practice opened in March 2016 and it’s a welcoming, warm and comfortable “medical home” for these patients and their families. 
 
Not forgotten: hospital physicians work to treat, study the rarest of diseases

Not forgotten: hospital physicians work to treat, study the rarest of diseases

Since April 2015, Nicholas O’Neill has traveled nearly three hours by car every week from southeast of Syracuse to Golisano Children’s Hospital. Here, in the confines of the Clinical Research Center, he sits in his wheelchair for a few more hours while nurses administer an injection to treat his Duchenne Muscular Dystrophy (DMD), a genetic disease that results in severe muscle degeneration and a life expectancy of 25 years old. 

Pediatric Cleft and Craniofacial Center’s Innovative Team Approach Simplifies Care for Complex Problems

Pediatric Cleft and Craniofacial Center’s Innovative Team Approach Simplifies Care for Complex Problems

The Pediatric Cleft and Craniofacial Center at Golisano Children’s Hospital cares for more than 500 patients a year with various facial differences. Cleft lip and palate is the most common surgery performed at the Cleft and Craniofacial Center, and the treatment requires the involvement of experts from many subspecialties. 

Golisano Children’s Hospital Earns Funding from NICHD Neonatal Research Network

Golisano Children’s Hospital Earns Funding from NICHD Neonatal Research Network

The Neonatology Division at Golisano Children’s Hospital has been renewed for its second consecutive stint as a part of National Institute of Child Health and Human Development (NICHD) Neonatal Research Network. URMC, in partnership with University at Buffalo, received $1.2 million from the NICHD and is one of just 15 major U.S. intensive care units that belong to the Network. The mission of the Network is to join hospitals together to answer questions about the health of newborn babies that cannot be answered by one hospital alone.