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Educational and Support Resources

Cystic Fibrosis Infection Control

Cystic Fibrosis Nutrition

Cystic Fibrosis Pulmonary Treatments

Inspire - The URMC CF Center Newsletter

View an archive of past issues.

Cystic Fibrosis Networking Websites

Financial Resources

Community Resources

  • Better Days Ahead - Parenting and coping support
  • Kids Adjusting Through Support (KATS) - Provides free, compassionate, support and educational services to children and families coping with loss or serious illness.
  • Mental Health Association - Ideal for patients with chronic illness AND a mental health concern; parents can call themselves.
  • Crisis Nursery of Greater Rochester - Provides a safe, nurturing environment for children from birth to age 12 whose families are in crisis. For up to 72 hours, children can live at the nursery, cared for by trained staff.