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Baby Girl Overcomes Multiple Medical Obstacles

Baby Girl Overcomes Multiple Medical Obstacles

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An ovarian cancer survivor, Krystle Ellis didn’t think she was ever going to be able to have a baby. For her and her husband, Ricardo, the world changed, when they got the news in February 2012 that Krystle was pregnant. While the Brighton couple firmly believed the pregnancy was a miracle, they had no idea about the journey they had yet to face.
 
From her first ultrasound at UR Medicine’s Strong Memorial Hospital, Krystle knew something was wrong. The scan showed that baby Brooke’s neck was hyper-extended and her brain and musculoskeletal system weren’t developing correctly. Krystle also had a uterine fibroid tumor that was sitting on top of Brooke’s head, taking up most of her space in the womb.
 
Future children's hospital reached a new construction milestone

Future children's hospital reached a new construction milestone

main loby constructionAs we move into a season of growth and renewal, the construction of UR Medicine’s future Golisano Children’s Hospital, scheduled to open its doors in 2015, continues to progress in many ways. While the finishing touches are being put on the building’s exterior, the installation of the interior details is really just beginning – and we can’t wait to see how they look!

In addition to the exterior framing being close to complete, the interior framing is also almost finished. One of the most exciting steps in the building’s recent progress is the start of the bridge connection, which will allow families, faculty, and staff to commute from the children’s hospital into Strong Memorial Hospital, and vice versa. The bridge is expected to be completed in late summer or early fall.

The new hospital will  provide our region’s families with the best environment for healing, with places for gathering, respite, resting, and playing. Some of the fun features will be the different play areas, including a secret play pod, named by generous children’s hospital supporters Wayne and Beverly LeChase,  in one of the walls of the main lobby. Other play spaces include a special area for teens, multiple interactive games, a play deck and more.

To learn more about how you can be a part of this exciting project, please contact the Advancement Office at (585) 273-5948.

Crush Cancer Concert honors patient with brain cancer

Crush Cancer Concert honors patient with brain cancer

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Friends and family of Hannah Metzler, a Fairport High School (FHS) junior and UR Medicine’s Golisano Children’s Hospital patient who passed away last month after a battle with brain cancer, will gather in memory of Hannah at the second Crush Cancer Concert at 2 p.m. April 19, at the FHS auditorium. Hannah and her brother Luke, a member of the University of Rochester’s YellowJackets, organized the first benefit concert last year and, before she passed, Hannah asked that her family make sure the event she was planning come to fruition for its second year.
 
 
Last year’s event raised more than $18,000 to benefit cancer-related causes. In addition to supporting Rochester's Teens Living with Cancer (TLC) and a memorial fund being set up in Hannah’s name, this year’s concert will also benefit Golisano Children’s Hospital’s Bright Eyes Fund, a fund aimed at improving the lives of children with brain tumors and their families throughout their treatment and beyond.
 
Wegman Family Charitable Foundation Gives Hospital $7M

Wegman Family Charitable Foundation Gives Hospital $7M

JoelYesterday, University of Rochester President Joel Seligman announced two extraordinary gifts from The Wegman Family Charitable Foundation (WFCF): a $7 million gift to support UR Medicine’s Golisano Children’s Hospital and a $10 million lead gift to the University’s Institute for Data Science.

Together with previous gifts to several programs across the University campuses, the announcement brings the WFCF’s total contributions to the University’s comprehensive campaign to $20 million.

“It is our honor to support the University’s campaign,” said Danny Wegman, the Foundation’s president and chairman of the board. “What could be more important or gratifying than ensuring the health of our children?”

The Institute for Data Science and the Golisano Children’s Hospital campaign are flagships of the $1.2 billion goal for The Meliora Challenge: The Campaign for the University of Rochester.Brad and Danny

The new hospital, which is the largest capital project in the University’s history, is slated to open in the summer of 2015. To date, the community and donors, such as The Wegman Family Charitable Foundation and B. Thomas Golisano, have generously supported the hospital construction, giving $45 million of the $60 million that must be raised for the building. Wegman, honorary chair of the Medical Center campaign, hopes to inspire others to help close the $15 million fundraising gap still needed for the new building.
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Autism rate rises to 1 in 68 children

Autism rate rises to 1 in 68 children

According to a new estimate issued March 27 by the Centers for Disease Control (CDC) the number of kids with autism has risen sharply. The data identifies 1 in 68 children (1 in 42 boys and 1 in 189 girls) as having Autism Spectrum Disorder (ASD). The estimate, based on data of 8-year-old children in 11 sites across the U.S. is a 30 percent increase from the 1 in 88 reported two years ago.
 
In a recent Health Matters blog, Susan Hyman, M.D., autism expert and chief of Neurodevelopmental and Behavioral Pediatrics at UR Medicine’s Golisano Children’s Hospital, explains four major needs underscored by these new statistics and the beneficial resources we have in the Rochester community that provide early intervention and family support.
 
Autism is one of the seven priority programs of Golisano Children’s Hospital’s $100 million campaign and the prevalence of these new findings demonstrates the need for more research, treatment and support. Please consider making a gift toward this program. Your support could help enhance care, advance research, and educate future professionals who will work with children diagnosed with autism today. Learn more.