URMC / Golisano Children's Hospital / Ways to Give / Strong Kids News / September 2015 September 2015 Horseheads baby suffers rare condition Susan and Ron Waters of Horseheads looked over at their baby in the delivery room in Arnot Ogden Medical Center and noticed he had turned blue. He wasn't breathing. Born just a day before, on June 29, Xander would have another near-fatal episode at home before being diagnosed at UR Medicine's Golisano Children's Hospital with congenital central hypoventilation syndrome (CCHS), a rare disorder that affects one's breathing. Girl fights cancer with a lot of spirit September is National Childhood Cancer Awareness Month. This year, 16,000 children and teens will be diagnosed with cancer in the United States. 175,000 children will be diagnosed worldwide. Childhood cancer is one of the seven priority programs of Golisano Children's Hospital's current campaign. Your support could help a child like Koriemae Spirito. Fairport Music Festival celebrates new hospital The Fairport Music and Food Festival - a summer favorite that benefits patients and families at UR Medicine's Golisano Children's Hospital - went back to its roots of music and shortened its name to "The Fairport Music Festival" last weekend. It was beautiful weather for the two-day event where hundreds of people from the Rochester community showed their support for sick and injured children.