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September 2015

Horseheads baby suffers rare condition

Horseheads baby suffers rare condition

Susan and Ron Waters of Horseheads looked over at their baby in the delivery room in Arnot Ogden Medical Center and noticed he had turned blue. He wasn't breathing. Born just a day before, on June 29, Xander would have another near-fatal episode at home before being diagnosed at UR Medicine's Golisano Children's Hospital with congenital central hypoventilation syndrome (CCHS), a rare disorder that affects one's breathing.