Frequently Asked Questions
Q: Who is eligible to use TriNetX?
A:TriNetX is open to all researchers who have a valid URMC account, including employees of URMC and affiliates (e.g. Highland Hospital, FFT, etc.), graduate students, medical students, etc.
Q: How can I request access to TriNetX?
A: There are two steps to request access:
- Complete online self-paced training "TriNetX 101 - Basic Functionality Course" in MyPath (for URMC employees) or Blackboard (for Med center graduate students only).
This training is prerequisite to have access to TriNetX.
- Complete the TriNetX Access Request Form. The CTSI informatics team will review and setup your TriNetX account access within 2~3 business days.
Q: Where do clinical data in TriNetX come from?
A: TriNetX at URMC receives a Limited Dataset extraction of >1.5 million patients from the following:
- Strong Memorial Hospital
- Highland Hospital
- FF Thompson Hospital
- UR Medicine Ambulatory Clinics
- URMC Urgent Care Centers
Q: What clinical data are available in TriNetX?
A: Clinical data are available in the following categories:
- Demographics (age, ethnicity, race, vital status)
- Visit Types (inpatient, outpatient, ED, unknown)
Q: What data are NOT available in TriNetX at this time?
A: Clinical data are not available in the following categories:
- Visit Locations
- Providers (not queryable)
Q: How often are data refreshed in TriNetX?
A: Data is updated from eRecord on a weekly basis.
Q: How far back do the data go in TriNetX?
A: March 2011 to present.
Q: What codes and terminologies does TriNetX use as a basis for search terms?
A: Structured data in TriNetX is compatible with the following standard codes and terminologies:
- Demographics: HL7
- Diagnosis: ICD-9-CM/ICD-10-CM
- Medications: RxNorm
- Procedures: CPT-4/ICD-10-PCS/HCPCS
- Labs: LOINC
- Complex, derived and/or calculated facts have been codified into a searchable TriNetX ontology called "TriNetX Master Terminology". An example of this would be chemotherapy lines of treatment.
Q: Are dates in TriNetX obfuscated (e.g. shifted, masked, etc.)?
A: No. Dates are not obfuscated in TriNetX.
Q: Is patient count obfuscated when running a query in TriNetX?
A: Yes, patient count is obfuscated in two ways:
- Patient count is rounded up to the nearest 10 for all cohort sizes.
- When a query returns a single count (<10), a count of 10 will be reported, and you won’t be able to explore this cohort. You will get this message: “The cohort size is too small so detailed information cannot be displayed.”
Q: Can patients be identified in TriNetX?
A: No. Only patient counts are returned.
Q: Can patient-level data be obtained using TriNetX?
A: Yes. To get identifiable data, Limited Data Sets, or De-Identified data for your patient cohort for IRB approved studies or other qualified studies, please contact CTSI Informatics team.
Q. How do I access TriNetX?
- Go to TriNetX
- Enter your URMC email address in the email field. The password field will be automatically hidden when a valid URMC email is entered.
- Click “Login”, and you will be brought to "Sign in with your username and password" page.
- Enter your URMC Active Directory Credentials
- Your username is the one you use to login to your office computer. It is not your email address.
- Your password is what you use to check your URMC email.
- Choose “URMC Active Directory” from the Domain drop-down list and click “Sign In”.
- You will be brought into your TriNetX study page.
- If you login from a computer that is **not** on URMC network, Duo Authentication will kick in and asks for your approval on this login request from your registered mobile device. Upon successful login, the computer is recorded as a trusted device and you will not need to go through the Duo Authentication again, unless there is no active login from that computer in 60days.
- Your account will be automatically locked after 5 consecutive failed login attempts. Please contact CTSI Informatics for support if this happens.
Q. What browser do I need to use to access TriNetX?
A. TriNetX works on Chrome, Firefox, Internet Explorer, Edge, and Safari.
Q: TriNetX doesn’t seem to work on Internet Explorer. When I attempt to access the login page I get a white screen. What can I do?
A: Internet Explorer is supported by TriNetX. If your Internet Explorer browser is set to Protected Mode, it must be disabled in Internet Explorer's security settings.
To disable Protected Mode:
- In the top right-hand corner of IE, click on the gear icon
- From the drop-down menu, select Internet Options
- Select "Security" from the top menu
- Uncheck the box "Enable Protected Mode"
- Click “OK”
Q: Why are counts so low for queries concerning newborn data?
A: As a privacy protection feature, TriNetX makes ALL clinical facts (e.g., diagnosis, procedure, etc.) that were within 30 days from patient date of birth not queryable. For example, if a patient was born 1/1/16 and the fact occurred on 1/20/16, it would not be queryable on TriNetX’s web interface.
Q: What is the nature of the medication data in TriNetX?
A: Medication data consists of all historical and active medication orders that appear in the patient record.
Q: What is the nature of laboratory data in TriNetX?
A: Laboratory data consists of resulted labs in the patient record that can be associated to a LOINC code.
Q: Is there language data in TriNetX?
A: There is no language data in TriNetX, including ASL and interpreter services.