COPD: End-of-Life Care
Many people have not talked with their loved ones about how they’d like to be cared
for at the end of their lives. It’s an important talk to have, especially for those
living with a chronic disease such as chronic obstructive pulmonary disease (COPD).
What kind of care would you want if you were no longer able to speak for yourself?
If you developed severe breathing problems, would you want to be placed on a ventilator,
or a machine that breathes for you?
It's not easy to talk about end-of-life issues. Let your family know that by talking
in advance, they'll be more comfortable if they have to make difficult decisions about
Talking with your healthcare provider
The best time to plan for end-of-life care is while you’re relatively healthy. And
a good person to start with is your healthcare provider.
Discuss the different kinds of supportive care you might want and for how long. Ask
about the quality of life linked with different choices. Having this discussion with
your healthcare provider can help you think more clearly about options you might want--and
not want--at the end of life. In addition to your healthcare provider, there are others
who can also help:
Palliative care providers. These healthcare providers focus on lessening pain and
other symptoms of long-term and serious conditions.
Hospice representatives. These healthcare providers offer end-of-life care.
Religious advisors or clergy members. Hospitals have pastoral counselors.
Social workers. Hospitals also employ these professionals.
Counselors or therapists.
There are also many resources available online.
People with advanced COPD need to consider the eventual need for palliative care.
This is care aimed at making you as comfortable as possible.
Palliative care is always part of end-of-life care. But it can also be part of care
for anyone at any stage of a serious or chronic illness.
The purpose of palliative care is to relieve symptoms linked to serious illnesses.
Some of these symptoms may include pain, nausea, tiredness, shortness of breath, anxiety,
Palliative care doesn't cure illness. But it does try to make living with symptoms
easier. Palliative care measures can help decrease the feeling of shortness of breath,
People with severe COPD, for example, generally benefit from finding ways to decrease
their physical effort to take care of their daily needs. Examples include living on
one floor of a house, or having meals provided.
Check with your health insurance plan to see if this type of care is covered.
Put your wishes for end-of-life care in writing so healthcare staff and family members
have a record of them. An advance directive is a legal document that guides your healthcare
providers when you’re not able to make decisions for yourself.
A living will is one type of advance directive. This document describes the type of
medical care you would like at the end of your life.
A medical, or durable, power of attorney is a second type of advanced directive. This
document names the person you would like to make healthcare decisions for you if you
Your healthcare provider or local hospital will have forms for both types of advance
directives. They are also available online. The forms vary by state, and it’s important
to use forms accepted in your state.
Give copies of both documents to your healthcare provider and family members and keep
copies for yourself. You’ll want them with you if you are hospitalized.
You may also want to talk to your healthcare provider about the physician order for
life-sustaining treatment (POLST). This form encourages active communication between
you and your healthcare provider with the goal of preventing unwanted aggressive treatment
at the end of life. The use of the POLST document and wallet card also varies by state.
Talk with your healthcare provider about what is available in your state.
What you want may change over time. Make sure your documents are always up-to-date.
If your wishes change, be sure to talk with your family and healthcare providers and
update your documents.