Coping with Terminal Cancer
Sometimes, cancer can’t be cured. When that is the case, patients and families are
faced with complex emotions and decisions, and many end-of-life issues.
A terminally ill person is not expected to be cured of their disease or illness. But
they still need a lot of physical and emotional care and comfort. Knowing what a dying
person understands about their condition, as well as their fears, feelings, emotions,
and physical changes that occur may help those around them make the diagnosis and
dying process easier to cope with.
The emotional, physical, and spiritual impact a dying friend, family member, or spouse
has on a family and community can’t be measured. Understanding how people at different
ages and developmental levels view death and dying may help to ease many of the fears
and uncertainties associated with this process.
The concept of death
Everyone has their own unique idea or concept of death. This is influenced by your
past experiences with death. Other influences include your age, religious beliefs,
emotional development, and community. Movies, TV, and books are filled with images
of death. The person with a terminal condition may have lost a family member, friend,
or pet in the past. Treating death as a part of life is difficult. But it may help
ease some of the fear and confusion around death. Dealing with death must be done
within the belief system of the patient and family.
How children and teens view death
For a baby, death has no real concept. But babies do react to separation from parents,
painful procedures, and any change in their routine. A baby who is terminally ill
will need as much physical and emotional care as any age group. Keeping a regular
routine is important for the baby and their caregivers. Babies can’t tell you what
they need. So they often express fear by crying.
For toddlers, death has very little meaning. They may get the most anxiety from the
emotions of those around them. When a toddler's parents and loved ones are sad, depressed,
scared, or angry, they sense these feelings and become upset or afraid. The terms
death or forever or permanent may not have real value to children of this age group.
Even if they have had past experiences with death, the child may not understand the
relationship between life and death.
Preschool-aged children may begin to understand that death is something feared by
adults. This age group may see death as temporary or reversible, as in cartoons. Death
is often explained to this age group as going to heaven. Most children in this age
group don't understand that death is permanent. They don’t understand that everyone
and every living thing will eventually die, and that dead things don't eat, sleep,
or breathe. Death should not be explained as sleep to prevent the possible development
of a sleep disorder.
At this age, children’s experience with death is affected by those around them. They
may ask questions about why and how death occurs. Preschool children may feel that
their thoughts or actions have caused the death or the sadness of those around them.
The preschool child may feel guilt and shame.
When children in this age group become seriously ill, they may believe it is punishment
for something they did or thought about. They don’t understand how their parents could
not have protected them from this illness.
This same idea may make preschool-age siblings of a dying child feel they are the
cause of the illness and death. Young siblings of dying children need a lot of reassurance
and comfort during this time period.
School-aged children are developing a more realistic understanding of death. They
are starting to understand death as permanent, universal, and inevitable. They may
be very curious about the physical process of death and what happens after a person
dies. They may fear their own death because of not knowing of what happens to them
after they die. Fear of the unknown, loss of control, and separation from family and
friends can be the school-aged child's main sources of anxiety and fear related to
As with people of all ages, past experiences and emotional development greatly influence
a teen’s idea of death. Most teens understand that death is permanent, universal,
and inevitable. They may have had past experiences with the death of a family member,
friend, or pet. Just like adults, teens may also want to have their religious or cultural
Most teens are beginning to establish their identity, independence, and relationship
to peer groups. A major theme at this age is the feeling that they won’t die, that
they are immortal. Their realization of their own death threatens all these objectives.
Denial and defiant attitudes may suddenly change the personality of a teenager who
is facing death. Teens may feel as if they no longer belong or fit in with their friends.
They may feel they can’t talk with their parents.
Another important concept among teens is self-image. A terminal illness or the effects
of treatment may cause many physical changes. Teens may feel alone in their struggle
and scared and angry.
It is important for parents to realize that children of all ages respond to death
in a unique way. Children need support. They also need someone who will listen to
their thoughts and help ease their fears.
How adults deal with death
Grief is a natural human response to the loss of a loved one. It can show itself in
many ways. Grief, and strategies used to cope with it, vary not only between people
and families, but also among different cultural groups.
For survivors, the grieving process can take many years and many forms. The challenge
of accepting death and dying as the end stage of life is what the grieving process
is all about.
What is anticipatory grief vs. sudden loss?
This occurs when someone has a long illness, and their death is expected or anticipated. Anticipating
the loss of a loved one can be just as painful and stressful as the actual act of
losing that person. Anticipatory grief allows the family to get ready for the inevitable
death. This can be a time to resolve issues and concerns. It is a time to seek the
support of spiritual leaders, family, and friends. It’s also a time to clarify the
loved one's wishes for funeral and burial arrangements and other end-of-life issues.
This refers to a death that happens unexpectedly and suddenly, such as a fatal accident,
suicide, or heart attack. Such tragedies can leave survivors feeling shocked and confused.
Loved ones are often left with many questions, unresolved issues, and many emotions,
including anger, guilt, and pain. Support from family, friends, and spiritual leaders is
key for anyone who has had a sudden loss.
What may happen in the case of anticipated loss?
Many people facing their own death are willing to discuss issues of death and dying.
This can be a time to discuss spiritual issues, resolve family concerns, reflect on
a loved one's life and accomplishments, and express gratitude. Some may feel that
they have unfinished work of personal importance to complete. This time is also a
chance to put practical matters in order, including the following:
Is there anyone the person would like notified of their illness, or is there anyone
they wish to visit while still able?
Are there places the person would like to visit, or is there something they would
like to do while still able?
Can funeral expenses be prepaid?
Which funeral home would the person prefer to handle arrangements?
Can the person help with obituary information to make sure it is accurate and complete?
What are the person’s specific funeral wishes?
If there will be a religious service, can the person facing death help plan favorite
readings or music?
Is cremation or burial preferred?
Has a cemetery plot been purchased?
Does the person want memorial contributions to be made to a certain charity or organization?
Can the person give information about practical issues, such as wills, bank accounts,
lawyer's name, pension plans, retirement funds, and life insurance policies?