Heart Transplant for Children
What is a heart transplant for a child?
A heart transplant is surgery to replace a diseased heart with a healthy one from
an organ donor. Organ donors are adults or children who have become critically ill,
often because of injury. They will not live because of their illness or injury. If
the donor is an adult, he or she may have agreed to be an organ donor before becoming
ill. Parents or spouses can also agree to donate a relative's organs. Donors can come
from any part of the U.S.
Why might my child need a heart transplant?
Heart transplants are recommended for children who have serious heart problems. These
children are not able to live without having their heart replaced. Illnesses that
affect the heart in this way include complex heart disease present at birth (congenital).
They also include heart muscle disease (cardiomyopathy) that may be caused by many
What are the risks of a heart transplant for a child?
There are risks with any surgery, especially major surgery like this. Risks include:
How do I get my child ready for a heart transplant?
Many tests are done before the heart transplant. These include blood tests that will
make it more likely that the donor heart will not be rejected. Other tests are done
to make sure your child and your family are emotionally ready for the transplant.
Your child will need your support during this process.
If your child is a good candidate for a heart transplant, he or she will be put on
the United Network for Organ Sharing (UNOS) list. Sometimes children wait only a few
days or weeks before getting a donor organ. It may also take months or years before
a suitable donor organ is available. During this time, your child's healthcare provider
and the transplant team will closely follow your child. You can also get help from
support groups during this difficult waiting time.
Each transplant team has its own guidelines about how you will be told when a donor
organ is available. In most cases, you will be called when an organ is available.
You will be told to come to the hospital right away so your child can get ready the
transplant. This call can come at any time, so you should always be ready to go to
What happens during a heart transplant for a child?
Once at the hospital, your child will have tests to confirm the match of the organ. Once
the test results are available and your child is ready, he or she will go to the operating
room. The transplant surgery may take 4 or more hours. The time it takes depends on many
things. During the surgery, a member of the transplant team will tell you about the
progress of the transplant. The general steps of heart transplant surgery are:
Just before the surgery starts, your child will get sleep medicine (general anesthesia).
The surgeon uses the open-heart method. This means he or she makes a large cut (incision)
into your child's chest. The breastbone is spread to reach the heart.
Your child is connected to a heart-lung bypass machine. The machine acts as your child's
heart and lungs. It pumps blood through your child's body during surgery.
The surgeon will remove your child's heart. He or she will then put the new heart
in your child's chest and stitch it into place.
What happens after a heart transplant for a child?
After the surgery, your child will go to the intensive care unit (ICU) to be watched
closely. The length of time your child will spend in the ICU will vary. Your transplant
team will help you learn how to care for your child during this time. This will include
information about medicines, activity, follow-up, diet, and any other specific instructions
from your child's transplant team.
Rejection is a normal reaction of the body to a foreign object. The body's immune
system makes antibodies to try to destroy the new organ. Anti-rejection medicines
are used to help prevent this from happening.
These are the most common symptoms of rejection:
Your child's transplant team will tell you who to call right away if any of these
Your child will need to take anti-rejection medicines for the rest of his or her life.
Because anti-rejection medicines weaken the immune system, children who get transplants
will be at higher risk for infections. Your child will have blood tests to measure
the level of anti-rejection medicine. For example, blood tests will be done to check
white blood cell counts.
The risk for infection is higher during in the first few months after surgery. This
is because higher doses of anti-rejection medicines are given during this time. Your
child will most likely take medicines to prevent other infections. Your child is at
increased risk for infections such as oral yeast infections (thrush), herpes, and
Your child will be closely followed after leaving the hospital. Follow-up visits may
Your child will need lifelong follow-up with transplant specialists. Make sure you
keep all appointments. It is especially important that you report any signs of rejection
Before you agree to the test or the procedure for your child make sure you know:
The name of the test or procedure
The reason your child is having the test or procedure
What results to expect and what they mean
The risks and benefits of the test or procedure
When and where your child is to have the test or procedure
Who will do the procedure and what that person’s qualifications are
What would happen if your child did not have the test or procedure
Any alternative tests or procedures to think about
When and how will you get the results
Who to call after the test or procedure if you have questions or your child has problems
How much will you have to pay for the test or procedure