Support groups
This page has links to websites with information about support groups for parents affected by birth defects. We hope you find these sites helpful. Please remember we don't control or endorse the information given on these websites, nor do these websites endorse the information given here.
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Genetic Alliance, 26400 Woodfield Road #189 Damascus, MD 20872, Phone: 202-966-5557, Email: info@geneticalliance.org
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National Down Syndrome Congress, Suite 108, 30 Mansell Court Roswell, GA 30076, Phone (toll free): 800-232-6372 (NDSC) or phone: 770-604-9500, Email: info@ndsccenter.org
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National Down Syndrome Society, 8 E 41st Street, 8th Floor, New York, NY 10017, Phone: 800-221-4602, Email: info@ndss.org
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National Organization for Rare Disorders (NORD) , Suite 310, 1900 Crown Colony Drive Quincy, MA 02169, Phone (toll free): 800-999-6673 or phone: 617-249-7300
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SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) , 2982 South Union St. Rochester, NY 14624
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The Compassionate Friends, 48660 Pontiac Trail #930808 Wixom, MI 48393, Phone (toll free): 877-969-0010
Medical Reviewers:
- Raymond Kent Turley BSN MSN RN
- Robert Hurd MD
- Tennille Dozier RN BSN RDMS