Faculty and Speakers
We are hosting an international two-day meeting from March 3-5, 2016 (to take place after the APHL Newborn Screening and Genetic Testing Symposium in 2016 in St. Louis) that will bring together experts in newborn screening, pediatrics, and neuromuscular disease as well as other public health stakeholders to review key topics in newborn screening for Pompe disease (already included in the Recommended Universal Screening Panel) and Duchenne muscular dystrophy (DMD) where pilot screening has already begun in the US.
The primary goal of this meeting will be addressing the components of 1) laboratory screening and 2) short- and long-term clinical follow-up needed to ensure improved health outcomes in Pompe disease and DMD. We will also discuss how these programs can be implemented to efficiently collect information about the public health and societal impact of population-based neuromuscular screening programs.
Steering / Planning Committee
Annie Kennedy, Parent Project Muscular Dystrophy
J. Gerard Loeber, Ph.D., Bilthoven, Netherlands
Robert C. Griggs, M.D, Rochester, New York
Jennifer M. Kwon, M.D., Rochester, New York
Faculty / Speakers
Jelili Ojodu, MPH, Association of Public Health Laboratories
Lisa Prosser, PhD, University of Michigan
Sharmini Rogers, MBBS, MPH, Chief, Newborn Screening Program, Missouri Department of Health
Lainie Ross, MD PhD, University of Chicago
Veronica Wiley, PhD, University of Sydney
Zhengyan Zhao, MD, Zhejiang University
Register for this event!