Deaf Community Partners

RPRC/NCDHR update! This video discusses the new approach to community engagement. To read the full article of this vlog, click here.

The Rochester Prevention Research Center (RPRC) has a strong commitment to community based participatory research (CBPR). CBPR is a way to involve community partners in all stages of RPRC research. RPRC has grown tremendously since we opened in 2004, and much of that growth has been with our work with the Deaf community. We want to continue to strengthen and grow our community partnerships and collaborations.

We value CBPR and carefully considered ways to grow our community partnerships to match the growth of RPRC projects and programs. After discussion with many stakeholders we decided on a new approach for RPRC collaboration with the Deaf Community. We are forming several small community committees, one for each RPRC project. This approach is based on a model used by Barbara Israel, a well-known CBPR researcher from the University of Michigan.

To read about the history of Deaf community collaboration, click here.

If you are interested in joining any of the below community committees, please email Kelly Matthews at Kelly_Matthews@urmc.rochester.edu (VP 585-512-8519).

Deaf Health Survey Community Committee

The Deaf Health Survey was collected over 2013/2014 and will provideDHS 2013 logo a “snapshot” of the health of the overall deaf community here in Rochester. Activities for this project's community committee include: assisting with data analysis, interpreting results of the survey, choosing survey topics for the next survey, and hosting town hall meetings to share the results of this survey with our community.

Click to learn more about the Deaf Health Survey.

Deaf Weight Wise Community Committee

Deaf Weight Wise is our most recent Clinical Trial that provided a researchDWW logo intervention for those aged 40-70 (2009-2014). The goal of Deaf Weight Wise was to teach participants healthy lifestyle habits, including proper nutrition and physical activity. Activities for this project's community committee will include sharing research results with the community, hosting town hall meetings to share results, and also providing feedback on the new cycle of Deaf Weight Wise, which will be known as DWW 2.0.

Click to learn more about the Deaf Weight Wise .

Deaf Weight Wise 2.0 Community Committee

Deaf Weight Wise 2.0 is our new core research project for 2014-2019. This is a Deaf Weight Wise intervention and Clinical Trial that will be adapted to suit those from ages 21-40. This will include both group interventions and one on one intervention through the VideoPhone. Activities for this project's community committee will include, assisting with the new curriculum, providing feedback on our research methods,and actively recruit community members to enroll in the study.

More information regarding Deaf Weight Wise 2.0 will come soon .

 

Research Opportunities

Focus Group Meetings

 

Seeking Deaf persons age 21-40 interested in participating in a one-time two hour focus group meeting in Rochester!

Focus Group Meeting Flyer

The interviews are limited to Deaf people who are now living in the Rochester (NY) area. The focus group will be conducted in ASL. We need your feedback on developing Deaf Weight Wise (DWW) 2.0. We will be asking about healthy eating and physical activity. The purpose of the group is to continue to develop culturally and linguistically appropriate healthy lifestyle research programs for Deaf people. Each participant will receive $30 dollars cash.

Interested? Contact

Jackie Pransky

(585) 568 6534 VP

Email: Jacqueline_Pransky@URMC.Rochester.edu