The Rochester Prevention Research Center (RPRC) works with populations of Deaf American Sign Language (ASL) users and people with acquired hearing loss, two distinct disparity populations that have in common the experience of being overlooked, excluded and underserved by healthcare, health research and public health programs. Historically, most health research programs that include Deaf people and people with acquired hearing loss have focused on hearing acuity, so the knowledge base related to basic health indicators is lacking. RPRC is the only research center in the world that works with Deaf sign language users and people with hearing loss to promote health and prevent disease using community based participatory research (CBPR).
RPRC:NCDHR is funded by the Centers for Disease Control and Prevention (CDC) through the Prevention Research Centers (PRC) Program. The PRC program is a network of academic researchers, public health agencies, and community members that conducts applied research in disease prevention and health promotion. RPRC:NCDHR is located within the Clinical and Translational Science Institute at the University of Rochester Medical Center.
RPRC is guided by 7 premises:
Deaf ASL users and people with hearing loss comprise distinct health disparity communities that are profoundly underserved and understudied relative to health.
Community based participatory research (CBPR) is well suited for health research with Deaf communities and communities of people with hearing loss.
Some health disparities experienced by Deaf people and people with hearing loss are related to lack of communication with sources of health information & healthcare.
Communication via sign language and other non-auditory channels can be greatly expanded and accessed through the use of readily available and evolving technologies.
Adaptation of evidence-based interventions to address major health issues with Deaf and hearing loss populations should be rigorously evaluated for efficacy, safety, and cost prior to dissemination.
The advancement of health research with Deaf and hearing loss populations will require education and training of health researchers from the Deaf, hearing loss and hearing communities.
RPRC:NCDHR should be rigorously evaluated for attainment of planned outputs and outcomes in the context of its CBPR and related programs
The RPRC:NCDHR is a Prevention Research Center funded by the Centers for Disease Control and Prevention. It is located within the Clinical and Translational Science Institute (CTSI) at the University of Rochester Medical Center.
Click on the image above or here to view the Org Chart
Click on the image above for a blown up copy of the RPRC:NCDHR Structure Diagram.
The Logic Model provides a "big picture" with four components (inputs, activities, outputs, and outcomes/impacts) of any given program. Logic Models can be used for planning, implementation and evaluation.
Click here for the PDF of NCDHR's Logic Model