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UR Medicine / Neurology / University of Rochester Batten Center (URBC) / Batten Disease Conference / Clinical Trials in Rare Diseases - General Resources

Clinical Trials in Rare Diseases - General Resources

Batten Disease Resources and Links

Here we provide some general resources relevant to clinical trials in rare diseases, including a list of relevant articles and website links. Please note that we cannot directly post published articles, due to copyright laws. However, wherever available, we have provided a link to a free, downloadable version of the article. Please contact us if you wish to suggest other materials to be shared here.

Support for this conference was provided by:

The National Institutes of Health – National Institute of Neurological Diseases and Stroke (NIH/NINDS): 1R13 NS078981, Outcomes and Infrastructure for Phase III Clinical Trials in JNCL - Batten Disease

The University of Rochester Child Neurology Research Fund