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Kirch Conference Aids Children, Adolescents and Adults with CP

Annual lecture addresses causes, treatments of neurological disorder

Monday, October 03, 2005

As immediate and long-term care for patients with cerebral palsy improves, so does the life expectancy of patients. That means what was once thought of as a disorder mainly affecting children has now become more common among adults.

Cerebral Palsy: From Clinic to Community, sponsored by the Andrew J. Kirch Developmental Services Center, Strong Center for Developmental Services, Golisano Children’s Hospital at Strong, University of Rochester Medical Center and CP Rochester, is a day-long conference Oct 18 at Burgundy Basin Inn in Pittsford focused on improving care for adults with cerebral palsy in the Rochester and Finger Lakes region.

“Nobody has known what to expect when caring for older adults with cerebral palsy,” said Phil Davidson, PhD., chief of Strong Center for Developmental Services. “Practice was guided by experience, and there wasn’t much experience.”

The keynote address, “What Really Causes CP?,” will be given by Karin Nelson, M.D., a Kirch visiting scholar and Senior Investigator for the Neuroepidemiology Branch of the National Institute of Neurological Disorders and Stroke at National Institutes of Health.

Teena Fitzroy, chairperson of Strong Center for Developmental Disabilities’ Consumer Advisory Board and a Family Information Specialist at Monroe BOCES #1, will lead a session on advocating for rights and needs as an adult with a disability. Other sessions will address educational, health and independence issues for both children and adults with cerebral palsy.

“People with disabilities are living longer than people ever thought they would,” Fitzroy said. “They are now dealing with doctors who aren’t always familiar with treating adults with disabilities.”

For more information, call the Andrew J. Kirch Developmental Services Center at (585) 275-2986 or go to our website at:

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