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Christine E. Zizzi, M.P.A.

Christine E. Zizzi, M.P.A.

she/her/hers

Contact

Call Center (585) 276-3000

About Me

Professional Background

Christine Zizzi, MPA is a health policy researcher with experience in health policy recommendation and implementation. She brings over 5 years of experience engaging with government and regulatory agencies, non-profits, community organizations, and pharmaceutical companies. Christine founded and lea...
Christine Zizzi, MPA is a health policy researcher with experience in health policy recommendation and implementation. She brings over 5 years of experience engaging with government and regulatory agencies, non-profits, community organizations, and pharmaceutical companies. Christine founded and leads CHeT Health, which aims to explore the role of health policy in shaping health outcomes, improve understanding of health disparities, advance policies to improve health equity, and augment the involvement of diverse populations during therapeutic trials. She holds a Master in Public Affairs from Princeton University’s School of Public and International Affairs with a certificate in Health and Health Policy. She received her BA in economics from Hamilton College.

Faculty Appointments

Associate - Department of Neurology, Center for Health and Technology (SMD)

Credentials

Education

MPA | Princeton University School of Public and International Affairs. Health Policy. 2022

BA | Hamilton College. Economics. 2018

Publications

Journal Articles

The Crohn's Disease-Health Index: Development and Evaluation of a Novel Outcome Measure.

Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Kaat A, Luebbe E, Dilek N, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C

Journal of clinical gastroenterology.. 2024 January 26 Epub 01/26/2024.

Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure.

Seabury J, Rosero S, Varma A, Weinstein J, Engebrecht C, Dilek N, Heatwole J, Alexandrou D, Cohen B, Larkindale J, Lynch DR, Park C, Subramony SH, Wagner E, Walther S, Wells M, Zizzi C, Heatwole C

Neurology. Clinical practice.. 2023 October 13 (5):e200180. Epub 08/28/2023.

The Facioscapulohumeral Muscular Dystrophy-Health Index: Development and evaluation of a disease-specific outcome measure.

Varma A, Weinstein J, Seabury J, Rosero S, Engebrecht C, Wagner E, Zizzi C, Luebbe EA, Dilek N, McDermott MP, Kissel J, Sansone V, Heatwole C

Muscle & nerve.. 2023 August 23 Epub 08/23/2023.

Patient-reported impact of symptoms in lung cancer (PRISM-LC).

Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Dilek N, Heatwole J, Baumgart M, Mulford D, Maggiore R, Conrow L, King JC, Wiens J, Heatwole C

Translational lung cancer research.. 2023 July 3112 (7):1391-1413. Epub 07/11/2023.

The amyotrophic lateral sclerosis-health index (ALS-HI): development and evaluation of a novel outcome measure.

Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Alexandrou D, Wagner E, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland J, Mehta P, Benatar M, Kaat A, Heatwole C

Amyotrophic lateral sclerosis & frontotemporal degeneration.. 2023 May 15 :1-9. Epub 05/15/2023.

Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): A national, cross-sectional study.

Zizzi C, Seabury J, Rosero S, Alexandrou D, Wagner E, Weinstein JS, Varma A, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland JM, Mehta P, Benatar M, Heatwole C

EClinicalMedicine.. 2023 January 55 :101768. Epub 12/13/2022.

Disease Burden in Children With Spinal Muscular Atrophy: Results From a Large Cross-Sectional Study.

Rosero S, Weinstein J, Seabury J, Zizzi C, Wagner E, Varma A, Heatwole J, Alexandrou D, Ms ND, Johnson BA, Heatwole C

Journal of child neurology.. 2022 December 19 :8830738221135918. Epub 12/19/2022.

Patient-Reported Impact of Symptoms in Friedreich Ataxia.

Seabury J, Alexandrou D, Dilek N, Cohen B, Heatwole J, Larkindale J, Lynch DR, Park C, Rosero S, Subramony SH, Varma A, Wagner E, Walther S, Weinstein J, Wells M, Zizzi C, Heatwole C

Neurology.. 2022 November 28 Epub 11/28/2022.

Patient-Reported Impact of Symptoms in Crohn's Disease.

Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Luebbe E, Dilek N, McDermott M, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C

The American journal of gastroenterology.. 2022 November 15 Epub 11/15/2022.

Assessing Perspectives of Disease Burden and Clinically Meaningful Changes Using the Spinal Muscular Atrophy Health Index in Adolescents and Young Adults.

Mazzella A, Cruz R, Belter L, Curry M, Dilek N, Zizzi C, Heatwole C, Jarecki J

Muscle & nerve.. 2022 May 26 Epub 05/26/2022.

The Huntington's Disease Health Index: Initial Evaluation of a Disease-Specific Patient Reported Outcome Measure.

Brumfield OS, Zizzi CE, Dilek N, Alexandrou DG, Glidden AM, Rosero S, Weinstein J, Seabury J, Kaat A, McDermott MP, Dorsey ER, Heatwole CR

Journal of Huntington's disease.. 2022 May 2 Epub 05/02/2022.

Correction to: P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient-Reported Outcome Measure for Clinical Trials.

Seabury J, Weinstein J, Rosero S, Varma A, Wagner E, Zizzi C, Dilek N, McDermott M, Kaat A, Saubermann L, Temple L, Rogoff S, Heatwole C

The American journal of gastroenterology.. 2022 May 1117 (5):817. Epub 03/09/2022.

Instructional Grouping Theory: Optimizing Classrooms and the Placement of Ranked Students

Weins, P.; Zizzi, C.; Heatwole, C.

Educational Practice and Theory. 2022; 44(Number 1): pp. 5-21(17).

P047?The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient Reported Outcome Measure for Clinical Trials.

Seabury J, Weinstein J, Rosero S, Varma A, Wagner E, Zizzi C, Dilek N, McDermott M, Kaat A, Saubermann L, Temple L, Rogoff S, Heatwole C

The American journal of gastroenterology.. 2021 December 1116 (Suppl 1):S12. Epub 1900 01 01.

The Spinal Muscular Atrophy Health Index (SMA-HI): A Novel Outcome for Measuring How a Patient Feels and Functions.

Zizzi CE, Luebbe E, Mongiovi P, Hunter M, Dilek N, Garland C, Ciafaloni E, Zaidman CM, Kissel JT, McDermott MP, Johnson N, Sansone V, Heatwole CR

Muscle & nerve.. 2021 March 12 Epub 03/12/2021.

The Spinal Muscular Atrophy Health Index: Italian validation of a disease-specific outcome measure.

Sansone VA, Pirola A, Lizio A, Greco LC, Coratti G, Casiraghi J, Pane M, Pera MC, Italiano C, Messina S, Pozzi S, Sframeli M, D'Amico A, Bertini E, Bruno C, Mauro L, Salmin F, Stancanelli C, Pedemonte M, Albamonte E, Zizzi C, Heatwole C, Mercuri E,

Neuromuscular disorders : NMD.. 2021 February 9 Epub 02/09/2021.

Mexiletine in myotonic dystrophy type-1: A randomized, double-blind, placebo-controlled trial.

Heatwole C, Luebbe E, Rosero S, Eichinger K, Martens W, Hilbert J, Dekdebrun J, Dilek N, Zizzi C, Johnson N, Puwanant A, Tawil R, Schifitto G, Beck CA, Richeson JF, Zareba W, Thornton C, McDermott MP, Moxley R

Neurology.. 2020 October 12 Epub 10/12/2020.

Patient-reported impact of symptoms in Huntington disease: PRISM-HD.

Glidden AM, Luebbe EA, Elson MJ, Goldenthal SB, Snyder CW, Zizzi CE, Dorsey ER, Heatwole CR

Neurology.. 2020 May 1294 (19):e2045-e2053. Epub 03/19/2020.