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Barbara Herr, M.S.

Contact Information

Phone Numbers

Office: (585) 275-6375

Fax: (585) 276-2056



I work collaboratively with Channelopathy and Muscle Study Project Unit faculty to design clinical treatment trials in rare neuromuscular diseases and to write grant applications to NIH, FDA, and the Muscular Dystrophy Association. I serve as co-investigator on funded projects, making suggestions for recruitment techniques and needed design modifications while the trial is in progress, and co-write manuscripts based on trial results. I assist in the T32 program, Experimental Therapeutics in Neurological Disease.



B.A. | William Smith College

MS | University of Rochester School of Medicine & Dentistry
Community Health Services


Phi Beta Kappa
Sponsor: William Smith College

Epsilon Pi Sigma, Science Honor Society
Sponsor: Hobart and William Smith Colleges


Journal Articles

Graves TD, Griggs RC, Bundy BN, Jen JC, Baloh RW, Hanna MG, . "Episodic Ataxia Type 1: Natural History and Effect on Quality of Life." The cerebellum.. 2022 Jun 3; Epub 2022 Jun 03.

Guglieri M, Bushby K, McDermott MP, Hart KA, Tawil R, Martens WB, Herr BE, McColl E, Speed C, Wilkinson J, Kirschner J, King WM, Eagle M, Brown MW, Willis T, Griggs RC, , Straub V, van Ruiten H, Childs AM, Ciafaloni E, Shieh PB, Spinty S, Maggi L, Baranello G, Butterfield RJ, Horrocks IA, Roper H, Alhaswani Z, Flanigan KM, Kuntz NL, Manzur A, Darras BT, Kang PB, Morrison L, Krzesniak-Swinarska M, Mah JK, Mongini TE, Ricci F, von der Hagen M, Finkel RS, O'Reardon K, Wicklund M, Kumar A, McDonald CM, Han JJ, Joyce N, Henricson EK, Schara-Schmidt U, Gangfuss A, Wilichowski E, Barohn RJ, Statland JM, Campbell C, Vita G, Vita GL, Howard JF, Hughes I, McMillan HJ, Pegoraro E, Bello L, Burnette WB, Thangarajh M, Chang T. "Effect of Different Corticosteroid Dosing Regimens on Clinical Outcomes in Boys With Duchenne Muscular Dystrophy: A Randomized Clinical Trial." JAMA.. 2022 Apr 5; Epub 2022 Apr 05.

Schnause AC, Komlosi K, Herr B, Neesen J, Dremsek P, Schwarz T, Tzschach A, Jägle S, Lausch E, Fischer J, Gläser B. "Marfan Syndrome Caused by Disruption of the Gene due to A Reciprocal Chromosome Translocation." Genes.. 2021 Nov 21; 12(11)Epub 2021 Nov 21.