Publications
Journal Articles
5/15/2023
Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Alexandrou D, Wagner E, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland J, Mehta P, Benatar M, Kaat A, Heatwole C. "The amyotrophic lateral sclerosis-health index (ALS-HI): development and evaluation of a novel outcome measure." Amyotrophic lateral sclerosis & frontotemporal degeneration.. 2023 May 15; :1-9. Epub 2023 May 15.
1/2023
Zizzi C, Seabury J, Rosero S, Alexandrou D, Wagner E, Weinstein JS, Varma A, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland JM, Mehta P, Benatar M, Heatwole C. "Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): A national, cross-sectional study." EClinicalMedicine.. 2023 Jan; 55:101768. Epub 2022 Dec 13.
12/19/2022
Rosero S, Weinstein J, Seabury J, Zizzi C, Wagner E, Varma A, Heatwole J, Alexandrou D, Ms ND, Johnson BA, Heatwole C. "Disease Burden in Children With Spinal Muscular Atrophy: Results From a Large Cross-Sectional Study." Journal of child neurology.. 2022 Dec 19; :8830738221135918. Epub 2022 Dec 19.
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