Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.
For Patients and Families
Cystic Fibrosis Foundation – Rochester Chapter - https://www.cff.org/
Cystic Fibrosis Family Connection "The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families." - www.cffamilyconnection.org/
CysticLife.org - a social network just for the cystic fibrosis community. This positive, uplifting web site is the central location for the CF community to share tips, questions, ideas, experiences and encouragement. https://cysticlife.org/index.php
CysticFibrosis.com is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community. http://cysticfibrosis.com/forums/
CF Source - many videos that take a deeper look at CF https://www.cfsource.com/tools-resources/#cf-video-source
CFCooking - Healthy Cooking for People with Cystic Fibrosis. Watch videos on YouTube
Cystic Fibrosis Research Inc. funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers. http://cfri.org/
The Bonnell Foundation provides tools to navigate the difficulties of living with CF http://thebonnellfoundation.org/resources/
Rock CF is heightening awareness and making sure that an illness that often goes unseen, doesn’t get forgotten http://letsrockcf.org
The place to find helpful information about Pulmozyme http://www.pulmozyme.com/cystic-fibrosis-resources
Contact Donna Germuga by email to add your services to this list, make changes or suggestions.