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Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.

For Patients and Families

Cystic Fibrosis Foundation  Cystic Fibrosis Foundation – Rochester Chapter - https://www.cff.org/

 

 

 

Cystic Fibrosis Family Connection  Cystic Fibrosis Family Connection "The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families." - www.cffamilyconnection.org/

 

 

Cystic Life  CysticLife.org - a social network just for the cystic fibrosis community. This positive, uplifting web site is the central location for the CF community to share tips, questions, ideas, experiences    and encouragement.  https://cysticlife.org/index.php

 

Cystic Fibrosis  CysticFibrosis.com is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community.  http://cysticfibrosis.com/forums/

 

 

 

CF Source - Provided by Vertex Pharmaceuticals CF Source - many videos that take a deeper look at CF https://www.cfsource.com/tools-resources/#cf-video-source

 

CFC  CFCooking - Healthy Cooking for People with Cystic Fibrosis.  Watch videos on YouTube

 

Cystic Fibrosis Research Inc Logo Cystic Fibrosis Research Inc. funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers. http://cfri.org/

 

The Bonnell Foundation LogoThe Bonnell Foundation provides tools to navigate the difficulties of living with CF http://thebonnellfoundation.org/resources/

 

Rock CF logo Rock CF is heightening awareness and making sure that an illness that often goes unseen, doesn’t get forgotten   http://letsrockcf.org

 

Pulmozyme logo The place to find helpful information about Pulmozyme http://www.pulmozyme.com/cystic-fibrosis-resources

 

Additional Resources

  • Since 2013, the Breathe Foundation has taken great strides to accommodate individuals and families in need of financial assistance http://justbreathecf.org/

Contact Donna Germuga by email to add your services to this list, make changes or suggestions.