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Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.

For Patients and Families

Cystic Fibrosis Foundation  Cystic Fibrosis Foundation – Rochester Chapter -




Cystic Fibrosis Family Connection  Cystic Fibrosis Family Connection "The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families." -



Cystic Life - a social network just for the cystic fibrosis community. This positive, uplifting web site is the central location for the CF community to share tips, questions, ideas, experiences    and encouragement.


Cystic Fibrosis is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community.




CF2Chat  CF2Chat – A forum and chat website for people with cystic fibrosis.





CFC  CFCooking - Healthy Cooking for People with Cystic Fibrosis.  Watch videos at this site: or on YouTube

Contact Laura Robinson by email or at 585-276-7906 to add your services to this list, make changes or suggestions.