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Cystic Fibrosis

Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.

For Patients and Families

Cystic Fibrosis Foundation  Cystic Fibrosis Foundation – Rochester Chapter - https://www.cff.org/

 

 

 

Cystic Fibrosis Family Connection  Cystic Fibrosis Family Connection "The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families." - www.cffamilyconnection.org/

 

 

Cystic Life  CysticLife.org - a social network just for the cystic fibrosis community. This positive, uplifting web site is the central location for the CF community to share tips, questions, ideas, experiences    and encouragement.  https://cysticlife.org/index.php

 

Cystic Fibrosis  CysticFibrosis.com is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community.  http://cysticfibrosis.com/forums/

 

 

 

CF2Chat  CF2Chat – A forum and chat website for people with cystic fibrosis.  http://www.cf2chat.com/e107/news.php

 

 

 

Nutrition

CFC  CFCooking - Healthy Cooking for People with Cystic Fibrosis.  Watch videos at this site: www.cfcooking.org or on YouTube

Contact Laura Robinson by email or at 585-276-7906 to add your services to this list, make changes or suggestions.