Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.
For Patients and Families
Cystic Fibrosis Foundation – Rochester Chapter - https://www.cff.org/
Cystic Fibrosis Family Connection "The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families." - www.cffamilyconnection.org/
CysticLife.org - a social network just for the cystic fibrosis community. This positive, uplifting web site is the central location for the CF community to share tips, questions, ideas, experiences and encouragement. https://cysticlife.org/index.php
CysticFibrosis.com is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community. http://cysticfibrosis.com/forums/
CF2Chat – A forum and chat website for people with cystic fibrosis. http://www.cf2chat.com/e107/news.php
CFCooking - Healthy Cooking for People with Cystic Fibrosis. Watch videos at this site: www.cfcooking.org or on YouTube
Contact Laura Robinson by email or at 585-276-7906 to add your services to this list, make changes or suggestions.