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Clinical Research & Trials

Connection in Caregivers

Lead Researcher: Kimberly Van orden

Subjects will complete a baseline interview (phone/zoom and online) at the beginning of the study. If eligible, subjects will complete 10 days of surveys that are texted 3 times a day (morning, afternoon, evening). Eligible subjects will also complete a follow-up interview (zoom/phone and online) at 6 months. Subjects are paid up to $250 for completing assessments. Inclusion: age 50 and older; caring daily for a loved one with dementia; caregiving stress. Exclusion: Under 50 years of age; not caring for a loved one with dementia daily.

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Mapping Meaningful Symptoms and Impacts in People with Prodromal Parkinson’s Disease- The PPMI Mapping Meaningful Symptoms Study

Lead Researcher: Jamie Adams

The goal of this study is to talk to people and gather information about symptoms related to Parkinson's Disease and Lewy Body Dementia. We will interview both healthy people and those who might be at risk for these diseases. The information we collect will help us understand the symptoms better and improve early diagnosis and care for patients with Parkinson's Disease and Lewy Body Dementia. Must be aged 60 years or older. Must be able to provide informed consent. Must be able to speak English. No significant neurologic or psychiatric disease. No diagnosis of Parkinson's Disease/parkinsonism/Lewy Body Dementia. Must be able to participate in an online interview conducted via Zoom with a tablet or computer.

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Social Engagement Coaching for Caregivers

Lead Researcher: Kathi Heffner

Taking care of someone who has dementia can become increasingly difficult. The well-being of the caregiver is important for both themselves and the person they care for. Healthy social connections are a vital part of this. The purpose of this study is to evaluate the effects of the Social Engage coaching program on caregivers’ well-being. This evidence-based, individualized program focuses on goals that are important to you and addresses the social barriers often encountered while caring for a loved one with dementia. The Social Engage program involves up to nine 30-minute virtual sessions (via Zoom or phone) conducted over 8-10 weeks, with flexible scheduling. Sessions are one-on-one, private meetings with a trained coach, and focused on your unique situation and the social connections that are important to you. Participation also involves 2 in-person study visits, one before and one after completing the Social Engage program. Visits are flexibly scheduled and parking is free. Study visits involve answering questions about yourself, including your mood and feelings of stress, and what caregiving has been like for you. We will also gather information about your physical and brain health.

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