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Fields Center for FSHD
(FSH Dystrophy) Research:
A Center without Walls
The Fields Center for FSHD and Neuromuscular Research represents the first concerted international effort to accelerate aggressive and innovative clinical and genetic research to find treatments for people with facioscapulohumeral muscular dystrophy, also known as FSH dystrophy or FSHD. The Fields Center is a “Center Without Walls,” advancing the synergistic efforts of two of the world’s leading institutions in the area of neuromuscular disease research, the University of Rochester Medical Center’s Neuromuscular Disease Center and Leiden University Medical Center’s Department of Human Genetics initiated the Center. Soon therafter, The Fred Hutchinson Cancer Research Center became an integral part of the Fields Center, bringing in vital expertise in skeletal muscle development.
Through this dynamic partnership between clinical researchers and basic scientists, Fields Center researchers have made groundbreaking advances in understanding the molecular mechanisms in FSHD describing the unifying hypothesis for FSHD in 2010. This discovery, identifying a target for therapeutic intervention, has shifted the focus in FSHD research toward the translation phase with potential therapy now on the horizon. In addition, the Center has been a driving force in establishing FSHD care standards, standards in genetic testing as well as in laying the groundwork for future clinical trials in FSHD The Fields Center actively recruits interested scientists to collaborate on studies, drawing on the expertise of leading researchers to address critical questions. Through these efforts, researchers strive to improve current disease management strategies and identify therapeutic targets to treat FSHD (FSH dystrophy).
The Fields Center was made possible through the generous support of Mr. Richard T. Fields, Chairman of Coastal Development, LLC, and the Fields Family Foundation. The Fields Family Foundation supports several charities and has been honored for its generous contributions to children’s and safety causes. Richard Fields is on the board of the National Center for Missing and Exploited Children, a global leader in assisting families, law enforcement, and news media in locating missing or abducted children throughout the world. Richard Fields is also a major donor and supporter of the New York City Police Foundation and Good Shepherd Service and is a board member of Farm Aid, a non-profit organization working to promote a strong and sustainable family farm-based system of agriculture throughout the country. The University of Rochester is grateful for Richard Fields long term support of this important project.
- September 19, 2014: Fields Center Investigator, Dr. van der Maarel, wins prestigious prize in the Netherlands.
- September 16, 2014: Fields Center Investigators publish the most comprehensive review of FSHD mechansims to date.
- September 16, 2014: Scientific references update.
- May 8, 2014: Highlights and presentations from the 4th FSHD Patient Day
- April 15, 2014: Updated Myoblast culture protocols
- October 14, 2013: Updated information for patients and families.
- October 7, 2013: Fields Center scientists organize clinical trial preparedness workhop.
- December 3, 2012: Updated methylation protocol for FSHD2.
- November 12, 2012: Fields Center Scientists Pinpoint the Genetic Cause of FSHD type 2.
- June 8, 2012: Biological resources available to share with research community.
- April 26, 2012: Fields Center scientists publish new research findings.
- April 13, 2012: The FSH Society's Guide for Schools.
- December 12, 2011: Muscle biopsy scoring added to research protocols.
- October 24, 2011: Fields Center Scientist receives prestigious award
- April 14, 2011: Fields Center scientist publish review article on FSHD mechanism.
- November 4, 2010: Highlights from the 3rd Annual Patient Day on Saturday, September 18, 2010.
- November 1, 2010: Video: Dr. Tawil discusses latest developments in FSHD research.
- August 19, 2010: Fields Center scientists publish breakthrough research on FSHD
- July 23, 2010: Podcast on pregnancy in FSHD by Dr. Emma Ciafaloni and Dr. Eva Pressman from the University of Rochester Medical Center.
- June 25, 2010: Publication of FSHD Standards of Care manuscript.