Sneak peek :
- What is the importance of enrolling people of all types into the Registry (page 2)?
- Can your information (re: medications, assistive devices, surgeries, etc.) be used to improve the care of all patients (page 2-4)?
- Are there exciting new insights in myotonic dystrophy (DM) and FSHD that may lead to new drugs (page 5-6)? Are we prepared for new treatments (page 7)?
- How can your voice be heard (page 10-11)?
Jim Hilbert and Liz Luebbe
Toll free: (888) 925-4302
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