Newsletters

2012 Newsletter

Sneak peek :

• What is the importance of enrolling people of all types into the Registry (page 2)?
• Can your information (re: medications, assistive devices, surgeries, etc.) be used to improve the care of all patients (page 2-4)?
• Are there exciting new insights in myotonic dystrophy (DM) and FSHD that may lead to new drugs (page 5-6)? Are we prepared for new treatments (page 7)?
• How can your voice be heard (page 10-11)?