Email this pageThe National Registry was developed to:
- Help people with Myotonic Dystrophy (DM) or Facioscapulohumeral Muscular Dystrophy (FSHD) participate in research on their disease.
- Help investigators accomplish their research by connecting them with people who have DM or FSHD.
- Encourage more research on these rare diseases.
This project has been funded in whole or part by Contract #N01-AR-50-227450 from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and the National Institute of Neurologic Disorders and Stroke (NINDS).
Last Reviewed and Updated 11/10/2008
