Realizing Opportunities for Self-Empowerment (ROSE)
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Many women face a complex array of social and economic adversities that contribute to physical and mental health burdens. These adversities can range from lack of transportation and childcare, to food insecurity, to violent victimization. Health care providers must consider the full context of women’s lives as they develop plans to help improve their health, but learning what patients need most and pooling resources to help meet those needs can be difficult. This page is a small step toward beginning this task – a resource for patients (and their family members and friends) and providers who are interested in improving the health and quality of life of women in the Rochester area and beyond. In an effort to promote this mission, we are conducting a clinical trial to determine how to best provide individualized assistance with social and economic adversities in a healthcare setting. We’d like to share some information about this project on this forum.
Project ROSE is focused on helping women who are experiencing adversities strive for improved health and quality of life. A vital part of this process is identifying the social factors that complicate each woman’s ability to address their healthcare needs. Project investigators and staff are seeking the best ways to engage patients from a large OB/GYN clinic in the development and implementation of individualized care plans that address their greatest concerns and priorities. These primary concerns may involve financial instability, interpersonal violence, and other psychosocial adversities, which are particularly prevalent among women of childbearing age. Though not necessarily biomedical in nature, addressing these hardships is essential to not only improving the health and quality of life for study participants, but also the children in their care.
The Project ROSE research team is assessing and comparing two different interventions that reach beyond “care as usual” to better understand patient-centered care provision for women at URMC’s Women’s Health Practice (WHP).
Enhanced Screening and Referral (ESR): participants who are randomized into this intervention receive a print out of their Promote-W comprehensive health screening results, and for each concern that they endorse on the survey, they receive a relevant referral for assistance. Survey results and referral lists are immediately available to patients to share with their provider and/or use at their own discretion.
Personalized Support for Progress (PSP) takes ESR a bit further, adding a prioritization task to help women identify the issues from the screen that matter to them most, and assistance from a patient navigator for 4 months to initiate steps to address their greatest needs.
Our Study Plan and Phases - Project ROSE has a 3-year timeline, and is currently in its 2nd year!
Year 1: Study tools are developed and approved; research staff is hired and trained; patient recruitment and enrollment begins; project feedback is obtained from community and national advisory boards.
Year 2: Patient recruitment and enrollment continues to completion; some enrolled patients finish all follow-up assessments; project website is launched; community and national advisory boards review progress.
Year 3: Patients finish all follow-up assessments; focus groups are conducted; data is prepared and analyzed; community and national advisory boards verify the findings; findings are disseminated via conferences and manuscript development.