Related Links
URMC
DM and FSHD:
- Fields Center for FSHD and Neuromuscular Research
- National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular
Dystrophy Patients and Family Members
Other Neurology and Research Links:
- Clinical research at URMC
- Clinical and Translational Science Institute
- The Ernest J. Del Monte Neuromedicine Institute
National Institutes of Health
- Clinical trials.gov
- Medline
- Muscular Dystrophy Coordinating Committee
- NIAMS (National Institutes of Arthritis and Musculoskeletal and Skins Diseases)
- NINDS (National Institute of Neurological Disorders and Stroke)
- Office of Rare Diseases Research (ORDR)
- Wellstone MDCRC
Other Resources
The links below provide educational information related to muscular dystrophy. Information from these resources does not necessarily represent the URMC Wellstone MDCRC, but, in general, fit with the goals of the center. We welcome suggestions to include additional resources that would disseminate pertinent and educational information to patients with muscular dystrophy, family members, and care providers.
MDA
DNA Testing and Genetic Counseling Services
Patient Advocacy Groups (United States)
- Friends of FSH Research
- FSH Society, Inc
- International Myotonic Dystrophy Organization
- Muscular Dystrophy Family Foundation
- Myotonic Dystrophy Foundation
- Parent Project Muscular Dystrophy
- Stone Circle of Friends
Patient Advocacy Groups (International)
- FSHD Global Research Foundation
- International DM2 Support / Advocacy Group
- Marigold Foundation
- Muscular Dystrophy Campaign
- Myotonic Dystrophy Support Group
- TREAT-NMD
Last updated 5/18/2009
